meniere

Author Topic: MS Update  (Read 36542 times)

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
MS Update
« on: Jan 19 2009, 04:53 PM »
Hi everyone

I just need to offload.  I had an outpatient appt today with the MS specialist nurse in my local hospital prompted by an MS relapse similar to the symptoms I had nearly a year ago, except more areas of numbness this time. 

I had another MRI before Christmas to check whether any new lesions have appeared and today was given the bad news that there are more brain lesions and the disease has progressed.  I no longer have a 'probable' MS diagnosis and have risen to the dizzy heights (pardon the pun) of definite MS.  Along with that go some difficult decisions to make about disease-modifying drugs and self-injection 3x a week.  Betaferon is their drug of choice and I will be offered it if I choose to go down that road.  Side effects are not pleasant i.e. flu-like symptoms for about 3 months, after which it should settle down.  I need to do lots of research in the next few weeks and make some decisions.  At the moment, I can't even think too much about it, just have to deal with the MRI result first.

Thanks for listening.  It's really good to write it all down.

Chris xx
not waiting for the storm to pass, but learning to dance in the rain ...

Offline Lambo

  • Member
  • ***
  • Posts: 74
    • View Profile
Re: MS Update
« Reply #1 on: Jan 19 2009, 06:03 PM »
Sorry to hear your news Chris, it must have been terrible to have it confirmed as MS, thoughts are with you


barbara

  • Guest
Re: MS Update
« Reply #2 on: Jan 19 2009, 08:20 PM »
Hi Chris,
So sorry to hear the news but at least now you know what you are dealing with. Doesn't make it any easier to make the decisions but is better than the 'What ifs'.
Can you get any feedback from the MS sites to help with the treatment choices.
Life is a B**** isn't it.!!
Thinking of you
Barbara

Offline knogins

  • Member
  • ***
  • Posts: 84
  • Gender: Female
  • hello
    • View Profile
Re: MS Update
« Reply #3 on: Jan 19 2009, 08:41 PM »
HI Christina,
Big hugs to you! Thinking of you and wishing that i had a magic wand just for you!xxxxxx

Take Care Hayley

Offline Laine

  • Member
  • ***
  • Posts: 51
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #4 on: Jan 19 2009, 10:34 PM »
Hi Chris,

Sorry to hear your news, hopefully we can all give you the much needed support, as when I have needed support you have always been one of the first to reply, offering valuable information.thanks.

Hope you find lots of information to help you in your decision.

Thinking of you.

Elaine



Offline jon

  • Trusted member
  • *****
  • Posts: 422
  • Gender: Male
    • View Profile
    • HNPP UK temp page
Re: MS Update
« Reply #5 on: Jan 20 2009, 01:09 AM »
What a downer... hope there's a better choice for treatment, 3 months of flu-like symptoms doesn't sound much like fun!
Take care,
jon
Tinnitus and deafness left ear 1981 onwards.
Diagnosed with meniere's in 1993.
Retired from work 1995.
HNPP - Hereditary Neuropathy with Pressure Palsy

ManiloonySally

  • Guest
Re: MS Update
« Reply #6 on: Jan 20 2009, 09:00 AM »
Hi Chris,

I am really sorry you have this, even knowing doesn't make it better, but you have always done so much for me, i wish i could do something for you too.  Please let us know what you decide and you have all the support here.

Take care and big hug to you.

Sally xx

Offline Marymac

  • Member
  • ***
  • Posts: 90
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #7 on: Jan 20 2009, 10:06 AM »
Hi Chris,

sorry to hear the latest. I hope the treatment has some effect for the better on you.

Thinking of you.

Mary
We Totter On!

Offline Gibson335

  • Trusted member
  • *****
  • Posts: 864
  • Gender: Male
    • View Profile
Re: MS Update
« Reply #8 on: Jan 20 2009, 10:16 AM »
So sorry to hear your bad news Chris.  I suppose in one way it's good to finally have a diagnosis, but now you have to deal with the reality of that.  I take it this is something that has arisen from what you believed was MD, is that right?  I had no idea that some of the symptoms were the same.

Wish you all the very best with the treatment and a decent prognosis.

Tony
I intend to live forever...so far so good.

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #9 on: Jan 20 2009, 11:46 AM »
Thanks so much everyone for your kind wishes and support.  This is the only place I come to vent.  The MD forum is like 'family' to me and I haven't wanted to get involved in any of the MS forums out there.  I shall stick with this site if it's Ok. 

Tony - the dizziness/vertigo can very much be part of MS but you normally see lesions on the brainstem as evidence that it's MS and not MD - hence the reason for MRI scans.  In my case, they have never seen lesions on my brain until this last 12 months and I've been having vertigo attacks for 12 years so ..... basically, they are not prepared to commit to saying the vertigo is part of the MS so I still have the atypical MD diagnosis too!  Lucky eh?  My very first MRI about 12 years ago was queried by my neurologist - he thought he saw something on the brainstem then, but this was discounted by the radiologist at the time.  Makes me wonder though.  My ENT consultant also said it was possible my vestibular nerve has been affected by the MS.

I am still relatively lucky in that only my sensory nerves are being affected at present, but the probability is that it will progress to motor nerves in the future.  That's the scary part. 

I will let you know how it goes. 
Thanks again to everyone for your support

Chris xx
not waiting for the storm to pass, but learning to dance in the rain ...

Offline Gibson335

  • Trusted member
  • *****
  • Posts: 864
  • Gender: Male
    • View Profile
Re: MS Update
« Reply #10 on: Jan 20 2009, 02:14 PM »
Our thoughts are with you, Chris.

All the very best.

Tony
I intend to live forever...so far so good.

Offline dizdog

  • Senior member
  • ****
  • Posts: 191
    • View Profile
Re: MS Update
« Reply #11 on: Jan 22 2009, 09:07 PM »
Why do these things seem to happen to the nicest people? Christine,thinking of you-thanks for the fantastic support you've given all of us ,lets hope we can support you now


Love Karen x

constanlydizzy

  • Guest
Re: MS Update
« Reply #12 on: Jan 23 2009, 08:57 AM »
Hi Chris

So very sorry to hear your news, I really hope things work out well for you and treatment is effective.
I can only repeat what others have said about you, life is so unfair.
Stay strong Chris, bless you XX

Julie

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #13 on: Jan 23 2009, 01:35 PM »
To everyone who's written kind thoughts and wishes, thank you all so much.

I must admit, it was like being told the news all over again on Monday.  I guess I had hoped the diagnosis 10 months ago was a mistake - that I would be one of the 10% of people who just had a one-off event and would never have another.  So now I really do have to face the possibility of a different future than the one I had planned and face it with so many unknowns and uncertainties - something you could all write a book about. 

I could do with sitting down with someone and talking through my fears and I am currently on a 12 month waiting list for some counselling with an MS psychologist! 

Each day as it comes is my motto at the moment.

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

pink

  • Guest
Re: MS Update
« Reply #14 on: Jan 23 2009, 03:59 PM »
hello Christina I am sorry to hear your news I wish you good luck I know that doesnt help you but we are all thinking of you
lots of love
Pink

Offline Gibson335

  • Trusted member
  • *****
  • Posts: 864
  • Gender: Male
    • View Profile
Re: MS Update
« Reply #15 on: Jan 23 2009, 04:00 PM »
Chris

At least the majority of us only have to re-plan our lives once - you've now had to do it all over again.  I can recall in minute detail how I felt knowing my life would never be the same again - and at that time I really did think I was facing it alone.  Then I found this place, and sanity - of sorts - was restored.

We can empathise with MD sufferers, but only sympathise with your new diagnosis.  A 12 month wait for psychological help is attrocious, and again I wish you all the very best with your new fight.

Tony
I intend to live forever...so far so good.

Offline KMM

  • Member
  • ***
  • Posts: 69
    • View Profile
Re: MS Update
« Reply #16 on: Jan 25 2009, 11:52 AM »
Dear Christina

I am so very sorry to read your news here today, you were one of the first people to welcome me, and have given me much support and lots of information the last few months, one of lifes 'gems' you are Christina.

I can so understand how you must be feeling, and I wish I had more than words to offer you. 

We all can understand how it will take time for the news to sink in, and how tiring it is both mentally and physically to have to keep readjusting our lives, knowing that we will not be the same again, we are still us, but in a different way.

With very best wishes
Karen x

Lizzie

  • Guest
Re: MS Update
« Reply #17 on: Jan 27 2009, 10:18 PM »
Hi Christina

Best wishes to you, hang in there, I think you're really brave.

Take care you.

Liz x

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #18 on: Jan 28 2009, 01:34 PM »
Thanks again Lizzie, Karen, Tony and Pink.  Am trying to remain positive now that it's all sunk in a bit.  Feeling like my legs are tightly bandaged from under my heel to about knee level is a very strange experience, I feel like I'm wearing surgical stockings lol! 

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

Offline malone

  • Senior member
  • ****
  • Posts: 127
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #19 on: Feb 05 2009, 01:59 PM »
Hi Christina

I haven't been on here for a while so am just catching up reading everyone's posts.   

I'm so sorry to hear that the MS diagnosis is now definite.  Whatever treatment you decide on I really hope that it works out well for you.  My thoughts are with you.

Take care
Miri

Offline Bluesky

  • Member
  • ***
  • Posts: 40
    • View Profile
Re: MS Update
« Reply #20 on: Feb 05 2009, 04:46 PM »
Hi Christina,

Im sorry to hear of your woes. My Mum has had MS for 40 years!!! She takes drugs to keep it at bay and lives aboard as the cold and stress of living here would be too much for her. She is one tough cookie!!

I'll be thinking of you and I hope the symptoms of MS subside.

Best Wishes

Bluesky

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #21 on: Feb 22 2009, 06:11 PM »
Hi Guys

Last week was my neuro appt with the consultant this time.  More lesions had shown up on pre-Xmas MRI  - brainstem, frontal lobe and T4 spinal cord.  It's interesting that apparently many of the brain lesions don't cause any symptoms - it's those spinal cord ones you don't want because they are the ones that you really feel and can impact on mobility over time.  I've had a particularly horrible few weeks with symptoms in feet, legs, abdomen, arms and hands.  Mostly this has taken the form of numbness and tight bandlike sensations.  My hands have been particularly horrid - imagine trying to do things with a load of grit on your fingers - that's what it feels like.  I feel like the symptoms are now beginning to subside again, hooray.

Anyway, consltant wants me to seriously consider taking interferon injections 3x week - his words were, if you were in my family, I'd want you on it.  I'm a stubborn one though and the research evidence is certainly not compelling me to take it at the moment.  Side effects are not to be sniffed at - 'flu like symptoms for the next 6 months 3 times a week don't fill me with joy on top of all the balance stuff and numbness.  Each time you inject you get them - fever, shivering, muscle aches, headache.  I think I'm coping better than that at the moment and would rather just put up with the MS symptoms.  The injections cut down the number of relapses by 30%.  I'd like the figure to be a lot higher than that if I'm to go on it now.  Difficult choices.

Chris x

not waiting for the storm to pass, but learning to dance in the rain ...

ManiloonySally

  • Guest
Re: MS Update
« Reply #22 on: Feb 22 2009, 07:50 PM »
Hi Chris,

I am really sorry you are having to deal with this, i cannot begin to imgine how awful it must be.

I totally understand why you are unsure about having the injections, i know if it was me, i would hate the side affects and may possibly want to leave it, as like you said, you would want the percentage to be higher than 30%.

I just don't know what to say to you, except i am always thinking of you, i think you cope amazingly well and are a very strong lady.

I really hope you feel better and please keep us updated.

Take care of yourself.

Sally xx

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #23 on: Feb 22 2009, 08:32 PM »
Thanks Sally. I think you have a particularly hard time of it too when I read your posts.  I just deal with each day as it comes at the moment and I can assure you there are many times when I don't feel strong at all.

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

Offline squib

  • Member
  • ***
  • Posts: 29
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #24 on: Feb 22 2009, 08:37 PM »
Hi Chris

Have not been on for a few days but just read what is happening to you. So sorry that it wasn't a better diagnosis and for all the things that you are suffering at the moment. I know when I joined this site you were one of the first people to reply and make me think I was not alone and I could turn to you guys for help. All I know is that whatever you need we will be there for you. Try to stay strong and keep us posted. Thinking of you.

Lynne x

Offline Gibson335

  • Trusted member
  • *****
  • Posts: 864
  • Gender: Male
    • View Profile
Re: MS Update
« Reply #25 on: Feb 23 2009, 08:24 AM »
Chris

Sounds as if you're going through a really awful time at the moment, and it must be a tough choice with these proposed injections.  At least you can make an objective call on it having done your own research.  Balancing the benefits against the side-effects is always an issue, but in the end you have to do what you're comfortable with.

My thoughts are with you and I certainly wish you all the very best.  Of course you can't be strong all the time, but you obviously have a strong and pragmatic core, which will see you through.

Tony
I intend to live forever...so far so good.

Offline Michael C

  • Senior member
  • ****
  • Posts: 175
    • View Profile
Re: MS Update
« Reply #26 on: Feb 23 2009, 10:10 AM »
Hi Chris

I am so sorry that you have had such bad news,and my thoughts are with you.  It must be really difficult to decide what to do next, but I know you are certainly the right person to make an informed decision, as your advice is always sound and probably better than most consultants I have come across.

I hope you are not feeling too bad.

Take care

Best wishes


Michael x


Offline jon

  • Trusted member
  • *****
  • Posts: 422
  • Gender: Male
    • View Profile
    • HNPP UK temp page
Re: MS Update
« Reply #27 on: Feb 25 2009, 08:46 AM »
Hi Chris,

that all sounds pretty unpleasant. I hope you feel better soon. Good luck with the treatment, which ever way you decide to go.

jon
Tinnitus and deafness left ear 1981 onwards.
Diagnosed with meniere's in 1993.
Retired from work 1995.
HNPP - Hereditary Neuropathy with Pressure Palsy

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #28 on: Apr 27 2009, 10:18 AM »
Hi Everyone

Just to vent and moan on about my life with MS at the moment.  I'm having such a hard time with it all, with very little respite from the symptoms since January really.  This latest severe relapse has put me back on the IV steroids for the next week.  I feel as if I have a tightened thick rubber band spread around my torso under my ribs.  I am told it's called the MS Hug, but there's really nothing loving or nice about it.  I think it's actually really evil and makes me feel like I can't breathe properly.  I've had it for about a week now and it's not improving fast.  It's even made me sleep upright downstairs in the chair because I couldn't bear lying flat.  Think boa constrictors and you've got the right idea!  Add to that my right leg also feels tightly bandaged all the way from foot to hip and my face and tongue have joined in the numbness competition too.

After my emergency visit to my consultant last week, I've decided to try the inteferon injections and will start them in about a month.  Fingers crossed for my guys - I know I'll have a tough 3 months with side effects but I am hoping it will be worth it all in the long run.

Partly I am just writing some of this down because it helps and also because it's MS Awareness Week, so I'm doing my tiny bit for it.

Thanks for listening.  Lots of love and best wishes to you all.

Chris x

not waiting for the storm to pass, but learning to dance in the rain ...

barbara

  • Guest
Re: MS Update
« Reply #29 on: Apr 27 2009, 10:37 AM »
Hi Christina,
Sorry to hear this rough patch is not getting easier. Hope the interferon helps.
We are all routing for you and feel free to vent whenever you need.
My prayers are with you.
Barbara

constanlydizzy

  • Guest
Re: MS Update
« Reply #30 on: Apr 27 2009, 12:09 PM »
Hi Chris

Just want to add my best wishes as well. I really hope things begin to improve and hope the treatment works wonders for you.
bless you Chris xx

Julie

Offline ianw314

  • Member
  • ***
  • Posts: 50
    • View Profile
Re: MS Update
« Reply #31 on: Apr 28 2009, 08:27 AM »
Hi Chris

Truely heartbroken to here about your bad news Chris we all think we are unlucky to have MD but it puts things into prospevtive when you here someone as wonderful as you has a more severe illness but knowing by your posts the support and kindness you give to others im sure you will be strong and positive throughout your treatment and for me especially i will still look for your advice as always.

Take care
Ian x

Offline Gibson335

  • Trusted member
  • *****
  • Posts: 864
  • Gender: Male
    • View Profile
Re: MS Update
« Reply #32 on: Apr 28 2009, 08:32 AM »
Chris

So sorry to hear of yet another downturn.  Fingers crossed the injections help you out in some way. We're rooting for you.  It seems so unfair that one person should have to go through all this.  Please know that our thoughts are with you.

All the very best.

Tony
I intend to live forever...so far so good.

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #33 on: Jul 15 2009, 01:35 PM »
Just to let you all know, I did my first Avonex injection today - eeek!  I was really frightened and wanted to back out of it this week, but I didn't and it wasn't half as bad as I'd imagined.  It was an intramuscular injection into the leg and now I'm just waiting to see what side effects (if any) I get. 

So this is my life for a few years now - weekly injections - but I hope it will really slow down the disease progression and severity of relapses.

I'll keep you posted.

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

Offline Beckybec

  • Member
  • ***
  • Posts: 60
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #34 on: Jul 15 2009, 02:46 PM »
Hope you feel better soon Chris and that the injections help.

Best wishes to you,
Becky


ManiloonySally

  • Guest
Re: MS Update
« Reply #35 on: Jul 15 2009, 02:47 PM »
Hi Chris,

I really hope this helps you and that you have no or very little side affects..  thinking of you and look after yourself too :)

Sally xxx

Offline Gibson335

  • Trusted member
  • *****
  • Posts: 864
  • Gender: Male
    • View Profile
Re: MS Update
« Reply #36 on: Jul 15 2009, 04:32 PM »
My best wishes go out to you, Chris. We're all crossing our fingers for a positive outcome for you - as positive as it can be, any way!

Take care.

Tony
I intend to live forever...so far so good.

Offline knogins

  • Member
  • ***
  • Posts: 84
  • Gender: Female
  • hello
    • View Profile
Re: MS Update
« Reply #37 on: Jul 15 2009, 08:17 PM »
Hi Christina,
Hope all goes well and you see some improvements soon and  just to remind you how valued you really are to us all !!!

All the best,
Knogs xxx

Offline Michael C

  • Senior member
  • ****
  • Posts: 175
    • View Profile
Re: MS Update
« Reply #38 on: Jul 15 2009, 09:38 PM »
Hi Chris

I hope this will make a big difference to you and that you will feel the benefits soon.

Take care Chris

Kind regards

Michael x

desperatehousewife

  • Guest
Re: MS Update
« Reply #39 on: Jul 16 2009, 10:06 AM »
Hi Chris, thoughts are with you. Can only say I'm ashamed of myself. New to the site, I didn't read what's been happening to you! Really hope injections work well with no side effects. Thanks for welcome to the site Chris. Even though you are going through this you took the time.
Regards. Kath

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #40 on: Jul 16 2009, 10:26 AM »
Thank you everyone - as usual, you're always there to give me your support.

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

constanlydizzy

  • Guest
Re: MS Update
« Reply #41 on: Jul 16 2009, 10:26 AM »
All the best Chris, hope things go well and you see a big improvement.

Julie x

Offline dizdog

  • Senior member
  • ****
  • Posts: 191
    • View Profile
Re: MS Update
« Reply #42 on: Jul 16 2009, 12:36 PM »
Thinking of you Chris, hope your new treatment works for you

Karen x x

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #43 on: Jul 23 2009, 12:03 PM »
Wish me luck for my first solo injection at home tonight!!  Not too bad so far on side effects - mostly mild headache and a few chills and hot flushes!!

I had my annual ENT check up last night - I am now officially discharged from them unless I want to return.  Hearing test was completely normal (as usual) and the Registrar is convinced my vertigo, dizziness and general balance problems are part of MS - which I've probably had for 12 years so it would seem.  I asked why nothing on previous MRIs - he replied that the scan would have been targetted on inner ear and surrounding structures and not generally on the brain, so lesions may not have been seen.  What a shame no-one thought to do a complete brain scan before!!

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

ManiloonySally

  • Guest
Re: MS Update
« Reply #44 on: Jul 23 2009, 07:43 PM »
Hi Chris,

Good luck, i'll be thinking of you!  You cope so well, you say your side effects are mild, but they don't sound pleasant!

I can't believe they only did an MRI of the ear area!!  I guess that is what most of us get, if only they would scan the whole brain, you could have found out much earlier!

Take care Chris, let us know!

Sally xxxx

barbara

  • Guest
Re: MS Update
« Reply #45 on: Jul 23 2009, 08:34 PM »
Hi Chris,
Good luck with the solo injection.
I am amazed that they did not do a full brain scan originally. Mine certainly was because it was to rule out the other nasties and just scanning the ear area would not do that.
Seems a bit suspect to me.
Hope all continues to go well.
Barbara

SHARON

  • Guest
Re: MS Update
« Reply #46 on: Jul 23 2009, 10:07 PM »
Hi Chris
Hope it's gone well tonight with your first solo attempt.
I agree with Barbara that it seems very peculiar they didn't scan your brain when you had your MRI.  I was told three years ago that they were doing mine to rule out a benign tumour or MS.
I didn't get my Menieres diagnosis then (Labrynthitis) but at least they knew it wasn't MS
I hope that now they know what they are dealing with and you are at last getting the correct treatment things start to improve for you.
Take care
Purdy

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #47 on: Jul 23 2009, 10:17 PM »
Thanks everyone.  I must admit I am also suspicious of what the Registrar told me about my scans last night Barbara.   I am sure I was told I was having brain scans on previous occasions and that's what I thought I'd had.  At no time did they say it was only targeting the inner ear. I know I had a brain scan about 12 years ago requested by a neurologist I saw then.  He thought he saw something suspicious which was not agreed by the radiologist at the time, but I wonder now if he was on to something.

I feel a bit more confused now, not less!

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

desperatehousewife

  • Guest
Re: MS Update
« Reply #48 on: Jul 24 2009, 10:29 AM »
Hi Chris,
What you must be going through! Thoughts are with you. I think you're right to be suspicious. Cover up of what someone has missed earlier? Pity the neurologist was not more assertive 12 years ago!

How do you feel about this Chris? Would treatment 12 yrs ago have made a big difference? I'm not a shoulda, woulda, coulda, person, but wonder what a strong person you must be not only to face the diagnosis, but to deal with the possibility it could have been found much sooner.

Take care
Kath x

Offline Christina

  • Trusted member
  • *****
  • Posts: 3039
  • Gender: Female
    • View Profile
Re: MS Update
« Reply #49 on: Jul 24 2009, 11:12 AM »
Well the only thing I am pretty sure of is that I've had MS a lot longer than anyone is prepared to say and there is a thought in my mind about what if I'd had treatment earlier?  I mustn't get too hung up on that though because there won't be anything in it for me if I do.  Just have to deal with the here and now.

Last night's injection was Ok, not something I'm going to look forward to each week but fine really.  The needle is about 1.5" long and it has to go into the leg right up to the hilt.  Last night I was extracting the needle when the pre-filled syringe came off it, leaving the needle stuck in and I had to grab the end to get it out!  That made me feel more wobbly than putting it in!  About 11pm I started the shakes and chills, took some paracetamol and went to bed.  It lasted about 30 mins.  Yuk!

Not too bad this morning though.



Chris x
not waiting for the storm to pass, but learning to dance in the rain ...