Author Topic: Help cold feet..  (Read 3867 times)

Offline hayley

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Help cold feet..
« on: Jul 03 2010, 01:04 PM »
Hi all,its 6 days off til i have my grommet and injections and i find myself questioning everything..
I am indecisive about having the surgery done now but know i cant cope with the way things have been these last few months..I know i havent got the strength to try fight this horrendous illness but im also worried about taking the step forward as im also aware of the fact that there is no going back once they have started..
Should i have the surgery done ?
What will be the outcome be after ?
What if the surgery makes things worse ?
I have a very busy chaotic life at the moment that ive found difficult to keep on top of,as my middle daughter starts secondry school This year and although i try every effort to make it to all the school appts plus she has her trip away next week and she comes back on the day i have this done... On top of that my eldest daughter has a damaged right ear and has been given steroid nasal spray and ibuprofen and needs to see a specialist a.s.a.p.Then there is my 3 year old who bless her is having to put up with me with half the energy,all my physio appt hospital appts etc i really struggle. Me and my hubby are also in the middle of redecorating the whole house, I have no time or energy for me anymore and worried that this surgery is going to make me more ill. I have put all this to my hubby who has told me to write it down the best way i can and see what you all think..
What am i to expect when i come round after they have done the grommet and injection,How long will it take before i know if the procedure has worked,Is it an instant relief ? or is something that takes time to work..
I so want a miracle and know that it wont be.I just so want to feel better than i do now..
How is everyone
All my love
hayley x x

Offline Christina

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Re: Help cold feet..
« Reply #1 on: Jul 03 2010, 01:20 PM »
Hi Hayley

If you're undecided about the surgery right now, it is possible to delay it you know.  You might want to watch and wait for a few months, see how things go and maybe get it done when things are a bit quieter in your life.  It won't do you a lot of good to be stressed after an operation.  I can't comment on what it will be like for you after surgery - others will be able to share their experiences I'm sure.  It will be different for everyone.

I hope you get a clearer picture in your mind of what you want to do Hayley after others have posted.

Take care
Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

barbara

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Re: Help cold feet..
« Reply #2 on: Jul 03 2010, 02:56 PM »
Hi Hayley,
It is always difficult going into the unknown and not knowing whether it will make things better or worse.
I think you need to think about whether you can carry on as you are and if so will it still be the same or worse in 5 years time. You have other options if this doesn't work and delaying this will also delay them if they become necessary. Before you know it you may be 10 years along the road and still no better.
Delaying for a few months as Chris says may be a good option but  how will you feel in a months time if you are having a hard time. Will you wish you had bitten the bullet and gone ahead  with the treatment now.
No easy answer I am afraid.
Barbara x

SHARON

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Re: Help cold feet..
« Reply #3 on: Jul 03 2010, 03:35 PM »
Hi Hayley
Snap!!!
I'm having the same op and was told by my consultant that it would be done before the 1st July at the very latest. I've not heard anything from the hospital yet and I've not pushed because like you, I'm a bit uncertain as to whether it will actually make any difference....and therefore is it worth the aggro!!
I'm struggling a bit at the moment because I've overdone things lately....but I generally find that if I take it easy I'm not too bad.
It's just the thought that it might eventually mean I never do any of the things I want to for fear of making myself ill....and my life is already restricted enough as it is!!
Like you, I wish someone could tell me exactly what the outcome of this operation will be!
Decisions decisions  ???

Sharon x

Offline marie

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Re: Help cold feet..
« Reply #4 on: Jul 03 2010, 04:16 PM »
Oh Hayley, im afraid pet you and you alone can decide if its worth going for surgery, now or later , or if you don't want to go through with it , you can be giving the odds by doctor, but that's all, as for going or not it is up to you  i can advise is maybe write down all the pros and cons for either, and take your time in coming to a decision, i can say is every time i  went for surgery a lot of doubts came into my mind , some of my surgery worked and again some pocdures didnt but i was the only one who could choose if i went ahead or not .. and the same goes for you ..whatever you choose my thoughts are with you

Offline hayley

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Re: Help cold feet..
« Reply #5 on: Jul 03 2010, 08:31 PM »
Thankyou for your replies and as usual you all came up with some great advice..
Barbara you made me think about the possibility of feeling this bad for another month,i have lost months already more bad days than good and i would probably think "if only",if i dont have it done and still feel like i do now,all i want is some control back in my life and to stop feeling so bad most of the time..You have definitely given me a great question to ask myself and think about life if i dont go ahead..Thank you

Sharon,Good luck its so hard to make this decision but like you feel so restricted that anything will do aslong as it doesnt make me worse but i have read some negative posts on on this procedure and not really read anything positive,this is why im thinking whether or not i go ahead,once we move to the next step there is no going back...My consultant says it is 80% successful and wouldnt be doing the procedure if he didnt think i wouldnt benefit from it..I must be reading 20%of the ones it hasnt worked for or made them feel worse than they did beforehand..lol..Hope you make the right decision for yourself too,Im finding it hardwork to think lately never mind make decisions,my thoughts are with you.

Marie thanks for the advice on pros and cons i will do that.. Chris you were right I am now beginning to see a clearer picture on what to do and i will make my decision Monday and keep you all posted,after reading your replies you have all given me things to think about and im so grateful for that..For now im going to stop thinking  as its my Birthday tomorrow and i want to hopefully have a spin-free day(if im lucky),despite all the chaos going on around me and around my head.lol
Take care  :)

Offline Christina

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Re: Help cold feet..
« Reply #6 on: Jul 03 2010, 10:32 PM »
Happy Birthday for tomorrow Hayley - I hope it's spin-free for you.

Chris xx
not waiting for the storm to pass, but learning to dance in the rain ...

barbara

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Re: Help cold feet..
« Reply #7 on: Jul 04 2010, 06:50 AM »
Happy Birthday Hayley :flowers:

Barbara x

Kath

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Re: Help cold feet..
« Reply #8 on: Jul 04 2010, 09:12 AM »
Happy Birthday Hayley! I hope you have a really good (and spin/dizzy free) day!

About your misgivings about going for your treatment. As the others have said the decision is entirely up to you, but my gut instinct,having read your posts over the last couple of months, is go for it. You've had some terrible episodes recently haven't you. Also you were very positive after your last apppointment that you had faith in your clinicians. To not have the treatment means that you will (probably) stay where you are at the moment. The treatment is a positive step and is moving forward and moving on.
I was very reticent at one point about having my gentamicin treatment. However, when it came to it I would have had anything done if it was a chance of changing where I was at that point. For me it was a very positive outcome and I realise that I have been lucky. I think at some points we have to put ourselves in the handsof the medical staff and take the treatment on offer. If you want my advice I'd say go for it, but I'm not you and I don't fully know your situation.

All the best Hayley. Be brave
Lot of love
Kathx

Offline hayley

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Re: Help cold feet..
« Reply #9 on: Jul 04 2010, 11:48 AM »
Thanks everyone for the Birthday wishes :),unfortunately im not spin-free and have woke up this morning spinning being sick and im now left with a banging head:(
I have taken everything you have all said on board..
Kath your right when you say i have positivity from my clinicians and im certain now that if he thought i wouldnt benefit from the procedure he wouldnt be doing it..Im so glad to read a post with positive feedback and know deep down im just very anxious of the unknown right now,but felling so rotten today that i have took the decision to go ahead and just" go for it "like you say...
Thanks everyone again for your input and birthday wishes  :)
All my love
Hayley x x

NEWOSA65

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Re: Help cold feet..
« Reply #10 on: Jul 04 2010, 11:58 AM »
Hi Hayley,

I thought that you was having a saccus decompression surgery?  Have you changed your mind then?

I gather that you are having the steroid injections - definitely worth having and I feel that you should go ahead and have this procedure and not back out.  You have been having some awful attacks over the passed months including drop attacks and failing to go ahead now, i feel, would be a big mistake.  You have nothing to lose if the procedure is the steroid injections - fitting grommets and having the injections is a very straight forward procedure and almost 100% safe, so ask yourself, what do you have to lose?

Re the sac op which i thought you were having, that is an operation that may work but in most cases the results only last for a short period of time.  I managed 9 months and that was it for me, the attacks were much worse after the 9 month period of remission and i went on to have 3-4 major spins per week.  Only advantage was that i never experienced the feeling of fulness anymore and that was such a relief!!

Be brave and go ahead especially if the treatment is steroid injections/grommets.

Every best wish,

Simon :) x

Happy birthday too!

SHARON

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Re: Help cold feet..
« Reply #11 on: Jul 04 2010, 01:12 PM »
Happy birthday from me too....hope you are feeling a bit better now and enjoy the rest of the day
Sharon xx

Offline desperatehousewife

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Re: Help cold feet..
« Reply #12 on: Jul 04 2010, 02:17 PM »
Hi Hayley,
Happy Birthday too!  Sorry you're not well.

I was talking to another sufferer during the endless wait to see my ENT specialist a while ago. She had been told that if the grommets/injections don't work, as expected, the grommets can be removed & the small 'hole' will naturally heal up.  Of course, this is second-hand info & would check first, obviously, but the idea that there is 'no-going-back' might not be true.

Good luck with whatever you decide,
Kath xxx

Offline hayley

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Re: Help cold feet..
« Reply #13 on: Jul 04 2010, 04:11 PM »
Thanks simon much appreciated to know and yes im holding off the saccus decompression as i feel i should start with the grommets and injections.The consultant will perform one if i do not benefit but im sure i will im just feeling a bit anxious at the moment as we have alot on in the next coming weeks and i desperately want to feel much better than i do right now.At my pre-op we decided to leave the saccus decompression for now and he is going to monitor my progression along with a diary of my symptoms now,and after the surgery on the 9th..The fullness in my ears today is reaaly bad aand they are constantly squealing and i can hear the fluctuation thats going on with both ears...
Thanks Kath i think i need to remain as positive as possible as my anxiety has concentrated on the negatives..I will keep you all posted :)

Offline kath.d

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Re: Help cold feet..
« Reply #14 on: Jul 05 2010, 10:05 AM »
Hi Hayley
A belated Happy Birthday from me  :D it was my mums 70th the same day! 
Its a very daunting thing making the decision to have any sort of surgery, I know that in my case it was. But in the back of mind I knew it was the right way to go-because without trying it, my life was pretty much a crap roundabout of spins and feeling terriible.
 I do think its probably just last minute nerves that gave you the cold feet  ;) from the post you left after meeting with your consultant you were so confident with the comprehensive and structured plan that he had proposed for you and you could sense that at last you saw a light at the end of the dim dark tunnel!  my advice is dont let the nerves take over and just go for it- your young and you have a lovely family that you deserve to have some happy times with (without Mr MD playing gooseberry lol)
I havent had the grommets op so cant comment on it but I did originally have one giant dose of gentimicin which they hoped would cause a laby-it was semi successful but not long term so I had the laby eventually.
Chin up Hayley....Not long to go now  :) take care were all here for you  ;)

Kath xxx

Offline marie

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Re: Help cold feet..
« Reply #15 on: Jul 05 2010, 01:17 PM »
just wishing you a happy belated birthday hayley

NEWOSA65

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Re: Help cold feet..
« Reply #16 on: Jul 05 2010, 09:47 PM »
I'm glad to hear that you have postponed the sac operation and i think that you have made a good decision trying out the much less risky/less invasive steroid injections first!  I read an article recently on steroid injections (..type that is injected into the ears) and it seems that less injections = better results so hopefully this will do the trick for you Hayley and calm or fix the attacks so that you can get your life back on track again! :)  Every best wish, S :) x

ManiloonySally

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Re: Help cold feet..
« Reply #17 on: Jul 07 2010, 03:14 PM »
Hayley,

I think i would do it, as you have been so bad.  This is the exact same op i was supposed to have last year, but was suffering from anxiety so asked for injections instead, but i know my Consultant thinks the Grommets and steroid perfusions are better.  I did have it done in my one ear in 2006.  Feeling very much the same as you do, i wish i could just take the plunge and do it too, i'm such a baby when it comes to anaesthetics due to a bad one when i was 16.  I hope all goes well, i was told as always, no guarantees, but it's really worth a shot, as you may get a lot of benefit even if for several months.. go for it hayley and good luck :)

Sally xx

Offline Emma I

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Re: Help cold feet..
« Reply #18 on: Jul 07 2010, 03:55 PM »
Hi Hayley

As someone who'sbeen down the grommet/injection road I thought I'd share this. I've had this procedure 3 times now and despite a dizzy day 24 hours ish later on all occasions it wasn't too bad. I'm not sure if the effectiveness diminishes over time but I had a good period of remission following the first and second times but less with the third grommet. These treatments span about a 4 year period.
I still have the grommet in and it gives me no trouble, just be sure to wear ear plugs in water!

I would say go for it, anything that might improve things has to be worth it. I too have a busy family life so you have my utmost respect and empathy with all you have to cope with, it's really hard sometimes isn't it? Kids just don't stop being busy and it's not possible to explain why Mum is only 50% (on a good day) in working order!

All the very best of luck

Take care
Emma x