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Author Topic: Any advice or tips?  (Read 3723 times)

Offline s11ona

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Any advice or tips?
« on: Sep 21 2010, 11:46 AM »
I was just wondering if anyone has any useful advice/tips to help me cope, deal with my symptoms. I'm pretty new to this whole thing as I only started with symptoms at the beginning of this month and have currently been left to my own devices by the hospital until I go for an MRI on 16th Oct.

My first episode cleared up after two weeks and I went back to work last week but only lasted 3 days until my hearing loss returned with the dizziness, spinning, buzzing in ear, intermittent tinnitus, fullness in the ear,constant headache - which feels like someone pushing on the top of my brain. It's actually felt a lot worse this time round and I'm just not sure what I can do to help myself... and my boyfriend wants to help as well (bless him).

I'm currently on 8mg betahistine- 2 tablets 3 times a day. Not sure whether they're doing anything or not but the hospital are not willing at this stage to give me any different medication - do they take a while to actually have any effect?

Oh, so many questions. I'm just glad I found this forum as I feel quite isolated at the moment, so it's comforting to know that there are fellow sufferers at the end of my fingertips.

Many thanks in advance
Shona

barbara

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Re: Any advice or tips?
« Reply #1 on: Sep 21 2010, 12:08 PM »
Hi Shona,
It does take a while for the Serc tablets to build up in your system and unfortunately they do not help everyone.
Cinnarizine (stugeron) is a travel sickness pill that you can buy over the counter. This helps some people although be warned it can make you drowsy. It might be worth trying that to see if it helps.
Barbara x

Offline Christina

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Re: Any advice or tips?
« Reply #2 on: Sep 21 2010, 12:27 PM »
Hi Shona

Are you taking 16mg 3 x a day already - I may have that wrong but you've said 2 x 8mg tabs three times a day so you are already on the usual prescribed dosage.  Some people have taken higher doses but it would be something to discuss with your ENT or GP.  Serc doesn't work for some people I'm afraid but it is the usual first line treatment with other strategies being offered a while down the track.  I agree with Barbara that Serc can take a few weeks to notice any effect. 

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

Offline pint

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Re: Any advice or tips?
« Reply #3 on: Sep 25 2010, 03:48 PM »
Serc is great for some, and doesnt work for others.
If I could have my time over again I would have PROPERLY cut out salt from EVERYTHING, I would have had back and neck seen to by OSTEOPATH to make sure that everything in my neck is ok and allowing my ear to drain properly and I would have started Manual Lymphatic Drainage from the start (its a type of massage). Some people also find Vitamin B complex helpful - (I now take this at higher than recommended dosage every day).

I would never have left it in the hands of the docs - I spent 14 years under the docs with no improvement before trying some "other" things myself.  The way I see it, there is no waiting list for these things and they wont do you any harm, and might just help you a bit.

As a lifelong skeptic myself, I understand if you ignore this, but I wish someone had convinced me and maybe I wouldnt have missed out on my 20's!!!!
I also feel that regular excercise (and I know you dont feel like you can) is hugely important.  I found that cycling was easier than walking (weird I know, but we rock side to side when we walk and we dont on a bike) - and I cycle now every single day that I am able, especially when I feel dizzy, foggy and muggy....

Try everything, dont wast a moment -  Wilkinsons sell vitamins for cheap cheap cheap...

All the best

Offline s11ona

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Re: Any advice or tips?
« Reply #4 on: Sep 30 2010, 08:53 PM »
Thanks for the advice pint. I'm quite interested in trying the manual lymphatic drainage. I'm a regular of massages so if there's one out there that may actually help me, then all the better.
Funny that you mention cycling - I recently blagged a bike and am determined to get out on it as I LOVE cycling (not so much in the wind and rain though), so here's hoping...

Offline Martin

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Re: Any advice or tips?
« Reply #5 on: May 24 2011, 12:16 PM »
I would echo previous post about cycling - I started cycling regularly 2 years ago and it's really helped with balance and general wellbeing.
I too suffer from terrible headaches, and my GP has recently tried me on Zolmitriptan, a migraine med. (brand name Zomig, in the form of a nasal spray.) THis has really improved my life, although it's a strong drug and there are side effects. It doesn't suit everyone, but might be worth a try.
I saw a physio who sorted out my breathing - a lot of vertigo sufferers have a tendency to hyperventilate, and this actually makes the problem worse.

Offline shell

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Re: Any advice or tips?
« Reply #6 on: May 24 2011, 05:09 PM »
hi im a great believer in the saLT free , 2.5mg a day , although i cheat once a week to stop me going insane

Offline Starlight

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Re: Any advice or tips?
« Reply #7 on: Aug 23 2011, 06:16 PM »
 :tired:Hello I am brand new to this site and don't have time to go through the introductory post but I want to say this a specialist doctor told me when I went to see him for this problematic symptoms that he had examined many patients with Menieres and had always asked them this question to female patients did the symptoms worsen up to and during their monthly period. He found that they said yes and that equalled the notion that having a low iron count being anaemic made the tinnitus and dizziness worse and depending how bad the stages were before taking serc to try to really bbost iron intake. It helps me at this time.

Offline Emma

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Re: Any advice or tips?
« Reply #8 on: Aug 23 2011, 10:04 PM »
Hello, welcome and thank you for the information that is good to know and I shall be trying it myself.
Emma xx
Be happy - Keep smiling :-D

Offline shell

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Re: Any advice or tips?
« Reply #9 on: Aug 27 2011, 11:10 PM »
Oops meant 2.5g not 2.5mg