meniere

Author Topic: newbie with questions  (Read 3699 times)

Offline martina

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newbie with questions
« on: Sep 23 2010, 02:18 PM »
hi
I was diagnosed with uni-lateral MD back in may 2010 after experiencing problems on and off since nov 2009 and i have bi-lateral hearing loss from birth which has worsened with the MD. I am currently on 16mg of betahistine x3 daily and also use buccastem as a rescue remedy.
Since august my right ear(one affected with MD) has almost constantly been leaking fluid...sometimes so bad i cant even wear my hearing aid. My gp had prescribed numerous anti-biotics and eardrops/sprays but nothing seem to work...does anyone know of anything that might work because it works for them? I am getting so fed up and self concious of having watery fluid leaking all the time. Is this something caused by the MD? my gp doesnt really know about MD and the ent consultant was not very forth coming with advice and info.
Anything will be very greatly recieved.

martina  :)

barbara

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Re: newbie with questions
« Reply #1 on: Sep 23 2010, 02:34 PM »
Hi Martina,
Welcome to the group.
If the fluid is clear it could be a Spinal Fluid leak and this could be causing the Menieres type symptoms.
http://www.dizziness-and-balance.com/disorders/central/csf-leak.html
This site has good info and might be worth running past your GP along with a request to see a neuro-otolaryngologist.
Barbara

Offline Christina

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Re: newbie with questions
« Reply #2 on: Sep 23 2010, 02:54 PM »
Hi Martina

Welcome from me too.  Continuous leakage of fluid from your ear shouldn't be happening and my first thought is an infection that hasn't cleared with the antibiotics, in which case they should be swabbing it to see whether there is still an infection and what bacteria it is.  If your GP isn't too helpful and as it's been going on for a while, I think I would try and get an appt to see your ENT who should know much more about what could be causing this leakage.  Doesn't sound like your ear is painful (?) but there is clearly something going on there and needs further investigation.

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

Offline Moo80

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Re: newbie with questions
« Reply #3 on: Jan 30 2012, 02:48 PM »
Hi, I've also had almost continuous leaking from both ears for going on 5 years now. GP can't understand why and although swabs have been taken its not an infection. It's clear fluid to start with and really sticky  :P it then becomes really offensive smelling and my ear swells up. I've been told by consultant that I have menieres and myringitis and poss something else?! Although he didn't know what.  I too can't wear my aids which make life even more difficult. Another ENT visit this week hopefully with more answers

Offline Benny01

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Re: newbie with questions
« Reply #4 on: Jan 30 2012, 03:01 PM »
Hey there,

What medication, if any have they given you for this? As pointed out by, Christina it could be an infection that hasn't been cleared by the medication that you had.

Ear discharge is not a typical MD symptom. I used to get the same from my left ear, had continual ear infections since birth, eventually turned out after an MRI that I had a huge cholesteatoma in my left ear and a smaller one in my right, so had them both surgically removed. After having them removed, I've not once had the discharge from the left ear and I can completely understand feeling self conscious... The stuff that leaked from my left ear smelt awful, ended up being a pink and yellow colour, mainly because it was destroying my middle ear, which it did and so my left ear is not so good anymore :s

Have you had an MRI done? I had a 3rd c-toma removed the beginning of last year, prior to having the surgery though, I was getting a lot of typical MD type problems, primarily because I already had MD, I just didn't know it at the time :)

If possible also, try to see a neurotologist, these guys specialise in this field. I'm damn lucky that I happened to live where I did that I got a neurotologist immediately and he's awesome :)

Ben

Offline Sar

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Re: newbie with questions
« Reply #5 on: Sep 11 2012, 05:19 PM »
Hi there
This might be completely down the wrong road but like yourself I wear hearing aids and have done for about 3 years now all was fine then suddenly I had fluid leaking from my ears my gp said it was not infected and suggested it could be a reaction to my moulds. After speaking to the audiology dept we tried a different mould and I have had no problems since it worth a try.
Sarah