Author Topic: Labyrinthectomy and reading  (Read 8067 times)

Offline MikeBord

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Labyrinthectomy and reading
« on: Nov 15 2010, 12:14 AM »
I have had Manure's in my left ear since 1999. The vertigo was very sporadic until May of this year. I had lost most of my hearing and the tinnitus has been unbelievable over the last 11 years. I fully understand what everyone has and is going through. In July 2010 I started having drop attacks. I had more VNG tests. This time they could not induce vertigo in my left ear without the use of ice water and then it was deemed minor. Since I had no hearing to speak of and very little balance in my left ear, it was recommended that I have a labyrinthectomy.

Based on all the information I elected to proceed. It was an easy decision for me. I had the surgery on 9/16 and was at home eight hours later. It has been strange.  When I woke up from the surgery everything was 90 degrees to the right. Not what I expected. Fortunately, that did not last and everything righted in a couple of hours. The next couple of weeks focusing was very difficult but I was able to walk unassisted within 2 days. It was be 8 weeks on Thursday (11/11) and the only thing I have trouble with is reading (impacting work  :'(). It is getting better. I can read about 3 hours on a computer a day before tiring to the point of having to stop. The odd thing is that when I stop reading, even after 10 minutes, my head will bob for the remainder of the day and maybe longer.  I also get a strange light headed feeling in my head.

I would love to hear others experiences with the rehabilitation post labyrinthectomy surgery especially after reading or working on a computer.  I live in the United States and hope you all do not mind my participation in your blog.

Mike

Offline Christina

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Re: Labyrinthectomy and reading
« Reply #1 on: Nov 15 2010, 09:44 AM »
Hi Mike

Welcome to the site.  We have one or two members from the USA, and we're always pleased to have new people join.  Hopefully someone who's post lab will be along to chat about their experiences with you soon.

Chris x

not waiting for the storm to pass, but learning to dance in the rain ...

ManiloonySally

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Re: Labyrinthectomy and reading
« Reply #2 on: Nov 15 2010, 11:30 AM »
Hi Mike,

Welcome from me too.  I also have no experience of the laby, but others here will give you lots of info.

Sally x

barbara

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Re: Labyrinthectomy and reading
« Reply #3 on: Nov 16 2010, 08:07 AM »
Hi Mike,
Welcome to the site from me too.
I am amazed that you were able to go home the same day you had the op. I certainly couldn't even have stood up and took 48hours before I even managed to sit up. Because I stayed absolutely still I suffered no dizzyness or sickness after the op.
It is true however that younger people recover faster and providing you have no problems with your eyes or joints there is no reason why you shouldn't make a good recovery after extensive VRT. You will however always have this deficit so there will always be times when it catches you out.
Hope all goes well
Barbara

Offline glynis

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Re: Labyrinthectomy and reading
« Reply #4 on: Jan 10 2011, 07:04 PM »
hi,
I have MD but replying about the same op my son had done when was 7.
He is now 15 and leaves school this year.
After the op and when had the bandages and plug out he was a bit
wobbly and did have tinitus in that ear.
He had regular hearing tests and can hear from that ear but  down to 50.
The only problem he seems to find it locating sounds so has to be careful on
roads.
Also when hes asleep on his good ear he wont wake up when shout him up
for school so we have to give him a nudge .
He copes well at school and doing as good as everyone else if not more.
Hope you go on ok also .
love Glynis x
look for the good in everyone and have a good life !!!

Offline Grit

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Re: Labyrinthectomy and reading
« Reply #5 on: Feb 12 2011, 12:23 AM »
Hi

I have had Meniere's for over 20 years on and off, with varying degrees of symptoms and conditions. It got to such a bad stage within the last 6 months I decided to go for a Labyrinthectomy. More out of desperation than anything else.

I had the operation today under local, rather than general. (this included a gromit as well). I was in and out within 2 hours. I agree with Mike, with the rotation thing. Mine appeared to be around 45 degrees rather than 90 though. As to the reading and stuff, it appears to be ok. But I guess i'm only 12 hours past the surgery.

I will keep you informed though.

Good site BTW.

Graham

Offline kath.d

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Re: Labyrinthectomy and reading
« Reply #6 on: Feb 12 2011, 03:13 PM »
was this the gentomycin labyrinthectomy you had rather than the full mastoid one? (with you mentioning you had grommets aswell,)  Im wondering if this is why both you & th OP had similar experiences and were both up and about so quickly. I did try this myself and was back home within 4 hours of surgery, and had no real side effects.

Both myself and Barbara have had the full mastoid Laby and Its a longer more thorough process, but immediately after the op & for a couple of days after you are unable to move at all without severe vertigo kicking in, this can take a while to pass.

NEWOSA65

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Re: Labyrinthectomy and reading
« Reply #7 on: Feb 13 2011, 08:50 PM »
Hi Kath,

I notice that you had a labyrinthectomy - are your current symptoms from the other ear now or did the labyrinthectomy (presumably surgical laby) not work?  Just really interested as I may be facing this big op if my next procedure fails..

Let me know please and every best wish with the forthcoming gentamicin treatment :-)

Simon

Sorry kath, i think I have the brain fog tonight - i think i am getting mixed up with Gidges post! Through interest though are you now fixed in that ear and is your good ear unafffected?   ::)

NEWOSA65

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Re: Labyrinthectomy and reading
« Reply #8 on: Feb 13 2011, 08:53 PM »
Hi Graham,

I can only presume that you mean the chemical labyrinthectomy as you mention a local anaesthetic instead of a general?  Also of course you had the grommet so i will guess at gentamicin?  Hope all is good...

Simon

Offline Dizzymum

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Re: Labyrinthectomy and reading
« Reply #9 on: Mar 26 2013, 12:27 AM »
I'm interested in knowing how it went. Please

dizzymum

Offline MikeBord

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Re: Labyrinthectomy and reading
« Reply #10 on: Apr 21 2013, 04:30 PM »
It has been a long time since I posted the original post.  I can say I am in a better state today than in 2010.  I am not "normal" but functioning.  After my original post, I did not progress and finally got my doctor to act.  He sent me to a vestibular rehabilitation specialist than put me through a nine month program of guided vestibular exercises.  It was a difficult process physically but the outcome was tremendous.  I highly recommend that anyone electing the Labry surgery ensure that they have vestibular rehabilitation therapy as part of the pre and post surgery actions.  I waited a year do to a stubborn doctor and wasted valuable time in recovery.

Where I am today is amazing.  I can drive again as long as I am not too fatigued.  I can read and work a normal schedule.  I still have bobbing at times when I do not take breaks, execute a infrequent activity or encounter a very busy visual environment like stores.  I can say I am better and with all the issues encounter post surgery, I would not hesitate doing it again.  I have not been dizzy and no attacks.  The other Meniere's symptoms are the rebut manageable.

Mike

Offline chrissieg

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Re: Labyrinthectomy and reading
« Reply #11 on: Apr 21 2013, 05:43 PM »
Thanks very much for the update Mike- its so useful for others considering surgery or other options. And so encouraging too - really very pleased for you with such a successful outcome. I haven't had the surgery but have had several VRT sessions and its really helped with challenging environments to use the techniques.
Best wishes for the future
Chrissie
Chrissieg