meniere

Author Topic: Hearing/ fullness/ ringing a LOT worse after attack?  (Read 6603 times)

Offline Sianybee

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is this normal??? i had a 3 hr vertigo attack two days ago and Im a bit worried as noticed a few people say that their symptoms improve after due to the release of pressure?

well mine have gone worse... a LOT worse.... Im wondering if its due to the betahistine i started taking again (it didnt suit me as knocked me out before) aftetr the attack .... only taken two days of it so far and luckily iv not felt overly drowsy on it yet.... but my ears are buzzing soooooo loud and feels like the pressure inside is gonna make my head explode!!

can betahistine do this at first??? if it makes the blood flow better to the ear then wouldnt this explain the increased noise? :-s

im off to the doc tom to demand i see another ENT as this is getting me down.... x

Offline chrissieg

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #1 on: Sep 22 2011, 07:00 PM »
Hi
I dont think the beta histine will make the tinnitus worse but it can take a while for your ear to settle after a big attack as some damage is done to the inner ear with each attack.Give it a few more days and hopefully it will settle down. Or it may be that you are going to have the classic "cluster" of atacks and that this period has not ended yet-sorry to alarm you but it will subside eventually.

take care
Chrissie
Chrissieg

Offline Sianybee

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #2 on: Sep 22 2011, 07:13 PM »
Hi Chrissie... thanks for the response....

Yes i have heard thru here that the attacks can come in clusters.... :( i had a mini one last week for just 20 mins and then a huge one two days ago.... tbh my symptoms never really subside, iget literally the odd tinnitus/ fullness free day.... but it def is worse before and after a vertigo attack.... im hoping that another one is not looming around the corner as my last big one was April, do you seemto have a few in succession then? x

Offline Lindsey

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #3 on: Sep 22 2011, 10:41 PM »
Hi - the feeling of fullness or pressure in my ear (like my head wants to explode) just like you describe is the symptom of meniere's that is the most bothersome for me - and always has been.  This is because it never goes away. I've had a couple of bad vertigo attacks - one a couple of weeks ago being ten hours long and they are terrible at the time - but at least there are days or weeks between them occurring whereas the ear pressure is relentless day in and day out.
The last ENT specialist I saw suggested putting a grommet in to see if that would help and it actually made it worse.  Before I had the grommet it would come and go in cycles but since the grommet almost six weeks ago it has been intense every single day with not one days relief - and it's driving me nuts!
I didn't notice any difference in it immediately following the vertigo attack either and I don't seem to be getting any answers from doctors.
I'm now waiting to see another ENT specialist and am going to ask for the grommet to be taken out in the hope that things may at least return to the way they were pre-grommet.
I've also tried doubling my Betahistine dose and even tripling it to as much as 48mg. 3 x day and still no relief.
It's enough to drive you around the bend!

Offline Sianybee

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #4 on: Sep 25 2011, 07:20 PM »
Hi Guys, thought I would pop back on with a more positive post.... :)

It seems that the big attack has def relieved my symptoms now... it took a day or so but now my ears feel almost back to normal.... no pressure, no ringing, just slight hearing loss, but i would say just maybe 20% compared to the usual 70% from the last week or so..... i have had a really good weekend and been able to smile at last :)  don't get me wrong Ive been sleepy still so made sure i have had a lot of rest but all in all its just great to not have the symptoms right now.... fingers and toes crossed that this good spell lasts weeks or even months!!! PMA all the way!! :)

Lindsey that sounds terrible that your fullness NEVER eases off? not even after an attack? I tried the betahistine for a few days again last week and even tho i didn't go sleepy this time they did make me feel kinda strange, and a bit warm and jittery this time.... odd.... i had a great day Friday tho so wanted to share what happened.....

I went to my GP and saw a new doctor, a stand in one i think, well all i can say is i wish my usually doc was like him!! He suffer from tinnitus himself, has done since age 8, he was very supportive and really seemed to care about what i had to say... he told me that in his opinion the betahistine wont do a great deal.... but he has found that ginkgo Bilbo is useful and uses this himself as it increase blood flow to the cartoid artery?? any one have any experience with this? I'm going to buy some online and give it a shot anyway.....  he also said to me that if i have the money then acupuncture could really help.... now in the past i had sever acne, nothing wud clear this up... so i went to a Chinese herbalist and had a short course of acupuncture and some tablets, seriously now within one week my skin was totally clear!!! so again this is something i may take a shot at :)

The doc then asked me to stand up and said my posture is awful, that my neck protrudes and this could put pressure on my head and ears as my energy cant flow freely etc.... he suggested i do yoga, as this will help the posture and also enable me to relax, which i guess is of benefit as stress can add to MD symptoms... he even wrote me down the titles of some books to get about meditation.... I'm gonna give all this a go... i really did come out of there grinning from ear to ear due to the fact that these are things i already believe work... so I'm starting yoga this week and the books are on their way from amazon....

I guess all we can do is try these things.... i feel a lot more positive now and have my fingers crossed that some of the above works :)

regarding the grommets Lindsey I have heard too that they can make it worse :( i hope u get it taken out soon then and that it rectifies the problem x

Offline Diablo

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #5 on: Sep 26 2011, 02:48 PM »
Hi Sianybee.

I heard that Ginkgo Bilbo could benefit, some people swear by it. I tried it but after a couple of days it gave me a splitting headache; the worst headache I've ever had. I had this headache for a week after, even after stopping the Ginkgo, and even taking paracetamol or ibuprofen had no effect.

Steve.

Offline Sianybee

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #6 on: Sep 26 2011, 08:24 PM »
Oh dear really?? see I get headaches off a lot of things as suffer from migraine..... the betahistine gives me a headache i find so maybe the gingko will also :-s ..... well I will give it a try and see but i guess anything that increases blood flow to the head will cause a head ache?

what do you find helps you best Steve?

Offline Diablo

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #7 on: Sep 26 2011, 11:27 PM »
I can't really say that anything specifically helps me - but I'm convinced that stress and anxiety play a huge part in things. It's hard to avoid this when the Meniere's condition itself causes stress, so it means finding a way to break out of the vicious circle. Exercise seems to be important as it releases endorphins that promote the 'feel good' factor.

Posture - yes that's important. My MD was going through a bad patch last week, and I noticed that at the same time my neck and shoulders ached like hell. Specially at night, it prevents me from being comfortable in bed. I often get "mini-spins" when I turn over in bed.

Being disciplined in getting a good nights sleep is important. I usually wake up on the morning feeling totally wasted - like having a hangover without the alcohol. This leads on to the brain fog, headaches then on to dizzy spells. Then my sleep pattern gets totally out of sync so that I am falling asleep at 8-9pm, watching TV, but later can't sleep on the night. I have been on sleeping tablets - Nitrazepam. These do help me get to sleep but the next day seems even worse! And diazipam when things get really bad.

The condition has peaks and troughs anyway, so it's not easy to give credit to something you may try. People make all sorts of crazy connections, just because the disease happens to hit a trough at that time. I tried cutting out coffee for instance, and - amazing for me - drank tea instead. But coffee seems to be okay for me provided it's not too strong - in fact it relaxes me and makes me feel slightly better.

It seems to be important to drink plenty of fluids, to flush through the sodium levels in the blood. But alcohol is totally off limits for me, unfortunately, that does cause problems. I think because it plays havoc with fluid levels / dehydration.

I take my betahistine religiously but I am unconvinced with it - why do I still get attacks with it? I've tried Arlevert as well but that gave me headaches, like the ginko but not as bad.

Meniere's disease is caused by excessive fluid pressure in the inner ear - so increasing the blood flow to the head - wouldn't this make the pressure worse?

Steve.

Offline Lindsey

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #8 on: Sep 27 2011, 12:38 AM »
I agree with you Steve.  I've spent loads of money and tried all sorts of supplements and vitamins including Gingko, Betahistine, diuretics, and loads more, as well as many sessions of acupunture and cranial osteopathy and have come to the conclusion that unfortunately none of it worked for me.  Sometimes you can feel better and think that a particular treatment has worked - but then at some stage symptoms usually return. I've tried being alcohol free, caffeine free, low salt, no gluten, etc. but have come to the conclusion that it has its own flare ups and patterns of remission and of being active pretty much regardless of what I do or what I take, but for me lack of sleep definitely plays a huge part in how bad I feel the next day.

Offline Sianybee

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #9 on: Oct 13 2011, 08:52 AM »
Hi Guys

thanks for the posts... only just seen this as not logged on for few weeks... i have had 3 weeks symptom free and was kinda hoping this was gonna be a BIG remission, like months maybe... but yesterday I woke up slightly deaf and now im down to about 20% hearing in the bad ear with the annoying buzzing and fullness :( im GUTTED!!! I really thought I was on a good streak and even hoped that it may never come back as so far I have only had maybe 3 episodes tops.... all starting like this, then the noises and fullness increase over a month or so then the big spin that kinda clears it....

I tried the betahistine and it really does make me feel odd.... iv not been able to sleep properly when taking it, but tbh i never sleep well, bit of an insomniac all my life really.... but what u sed steve about the increase of blood flow to the head from the betahistine and gingko has made me think?  i mean wont that put more pressure on the inner ear??? i took it the last 2 days when i went a bit deaf and its defo worse now!!! :-s

gonna try the gingko today and see how i go....


one thing i did do over the last day or two was have a coffee and a can of pepsi.... which i have avoided for a week or so.... could this be coincidence???  i must admit that when i have had the ringing in the past the coffe has DEF made it louder.... im kickin myself now!!! as for alcohol iv not drank for 15 yrs due to another medical cond so that doesnt pose a problem, but i wud say it clearly must not help seeing as i still get the symptoms.....

how long do most peoples remissions last??? am i getting my hopes up in thinking that i will have a 2 mth remission???? I also rem that my last big spin was just before my period.... and now again its nearly that time...... connection at all????

x

Offline Lindsey

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #10 on: Oct 13 2011, 09:50 AM »
Sian, my last big spin was on the first day of my period as well.  I actually went a couple of months free of symptoms from late April through to mid June,  but then it all came back in cycles and is now pretty much bad every day in terms of the ear fullness, noise sensitivity and hearing loss. I haven't been able to identify any particular trigger for it at all.
I am seeing an ENT specialist next week and am planning on asking for an IT steroid injection in the hope that it might help with all this - fingers crossed.
All the best, Lindsey

Offline Sianybee

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Re: Hearing/ fullness/ ringing a LOT worse after attack?
« Reply #11 on: Oct 13 2011, 11:09 AM »
Lindsey

Strange how it seems to be connected to menstrual cycle hey, maybe it something to do with water retention? 

Can I ask something, you say ‘cycles’ do you find that whenever u have the fullness/ deafness etc that it always gets worse and results in a spin attack a few weeks down the line?  I feel terrified that this is the start of another one and its like a time bomb waiting to explode : -( 

How lng have u had MD for?  did u find betahistine helped?  Only I really don’t know what to do, feel so down today and actually thinking of asking the doc for some antidepressants x