Author Topic: Enough of being sad... :)  (Read 4396 times)

Offline Benny01

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Enough of being sad... :)
« on: Jan 21 2012, 04:16 PM »
Hey all,

I'm feeling positive since having a bit of a think about the problems I have... Since this horrible damn thing has taken more a hold of me, I've found that I'm simply more determined and motivated. I've always been an upbeat, positive person, but now I think I am more so.

Due to the unknowing of how I'm going to be affected at anytime, I've gotten to thinking that I simply have to make the absolute most of the times that I do feel ok and have started doing things that I may otherwise have not done, firstly... Playing music a lot and studying more than at any other time in my life, working harder than I used to, giving up smoking!! This could all be coincidence, but since being diagnosed with MD my motivation to do things seems to have shot up and I'm fairly sure it's to do with not knowing when I will or won't feel ok, so when I do I make the most of every minute of it.

Maybe one of the bigger problems is how I've been looking at the problem rather than thinking of pro-active ways of managing as best I can with what I have. I'm not saying I don't feel anxiety when I start feeling more dizzy, pressure build up etc, I do, but I still keep on doing the best I can and trying to focus on what I am able to do and no longer worrying about what I can't. Just the other day, the hearing in my left ear almost entirely disappeared and I was very upset, but when I actually took some time to sit back and think about it, sure it sucked and upset me, but it didn't stop me being able to do things that I would have been doing anyway. Fortunately, the hearing has come back a bit, which is obviously nice, but I'm still doing the same things I was doing before and if I have to modify them slightly, so be it, my life didn't suddenly disappear. It's amazing how much I'm able to enjoy things now that I'd never really tried before :)

I'm going to keep pushing myself to be positive and focussing on the best of what I have instead of spending time worrying about the problems that I face. Everything is easier to deal with if you can keep positive and upbeat which in itself I know it's not easy, but it's far easier than suffering with depression or other similar problems.

Just wanted to share and hope that this helps others :) 

Ben

Offline loretta

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Re: Enough of being sad... :)
« Reply #1 on: Jan 29 2012, 01:27 AM »
hi yes i do agree with Ben make the most of every GOOD day Loretta

Offline Emma

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Re: Enough of being sad... :)
« Reply #2 on: Jan 29 2012, 09:44 AM »
 :clap: :dance: :dance2: :goodstuff: :salute: :doh:
Am liking this positivity this morning :) live every day to the full and enjoy :D
Be happy - Keep smiling :-D

Offline chrissieg

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Re: Enough of being sad... :)
« Reply #3 on: Jan 29 2012, 10:05 AM »
Thats a great attitude Benny and basically what CBTs about- realising that your thoughts control your feelings and actions and so positive thoughts will generate positive feelings and actions. I firmly believe it has helped me and that in turn had a positive impact on the length and severity of my attacks. With hindsight, i think maybe some of my minor attacks were in fact panic attacks rather than MD when I was somewhere away from home and very anxious that every slight symptom was going to become a full blown affair.

I worked for years promoting CBT techniques in groupwork with offenders and thought after 6 months of severe symptoms - why arent i practsing what I preach? Things got better at least psychologically from there on.

To start with my CBT counsellor gave me a weekly sheet to complete where I listed negative thoughts, then tried to turn that into a positive, then plan action to achieve that. So an example would be

NEG; I wont go to see that film at the cinema because I may have an attack, that would be hideously embarrassing and how would I get help/home.I may feel resentful and upset I'm missing it but at least i',m safe at home.
POS ; I really want to see that film , so I will go because I'll feel great for achieving that afterwards and have that memory stored for when I really am bad and have to miss something.

ACTION: I'll go with someone who knows about my MD. I'll make sure I have my meds and earplugs with me. I'll sit in an aisle seat. I'll ask for help if I need it but otherwise i will ignore my MD until I get home!

Thought I would share that in case anyone is wondering what CBT is and if it would help them - your GP can refer you.
Chrissie

Chrissieg

Offline Elaine

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Re: Enough of being sad... :)
« Reply #4 on: Jan 29 2012, 11:06 AM »
Love this post Ben ! Thank you for sharing it  :)
I must admit although my head thinks positively ,I have been quite limited by MD and my other health issues and I do struggle at times .Rather than trying to overcome it to do things ,I tend to do things I know won't set me off or become a nightmare occasion and that keeps me calmer .
Elaine xx

NEWOSA65

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Re: Enough of being sad... :)
« Reply #5 on: Jan 29 2012, 01:10 PM »
Nice one Ben, thanks for adding this.  Simon :-))

Offline Benny01

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Re: Enough of being sad... :)
« Reply #6 on: Jan 31 2012, 11:02 AM »
Wow! Only just saw these responses :D

Really happy that it's helping people... Have to say, it's working a charm for me :D

Cheers all!  :goodstuff:

Benny :)

Offline rick.harvey

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Re: Enough of being sad... :)
« Reply #7 on: Feb 24 2012, 01:44 AM »
Carpe diem - "seize the day".

If you let it, this beast (MD) can take your life away from you - don't let it! Make every minute of every day count.

After all - while it is a terrible damn thing to carry around with you on a day to day basis, never knowing when it will rear its ugly head - MD is not life threatening.

Having been through the ups and down all MD sufferers have all been through, I have learnt to approach every minute of every day with the attitude of getting the most from life.

In fact I suffered long and hard from September 2009 - and was really p*****d  off that the beast had reared it's ugly head again after lying dormant for best part of 8 years - because earlier in July 2009 my partner and I and a couple of friends had begun planning a motorcyle trip around Europe for August/September 2011 and I didn't want MD hanging around threatening our plans. After all it is a loooong way from NZ to Europe.

Anyway I maintained a very positive attitude during the rest of 2009, into 2010 and into 2011, but the symptoms kept recurring even though I was doing everything I could to stabilise my position - very low salt diet, no alcohol, no coffee or other sources of caffeine, tried to stay happy and strees free and so on.

Then after a bout of severe symptoms over Easter 2011 things started to come right and we did get away on our trip, and I was totally, absolutely 100% symptom free during the 7 weeks away. I was elated.

Two weeks after returning home I developed minor symptoms again (maybe I'm allergic to NZ), but now those minor symptoms have virtually gone, and I remain convinced to this day that I was able to go away on our motorcycle trip because I had something really positive to focus on and kept happy and motivated.

Life is good right now!

Cheers

Riuck

Offline Stu63

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Re: Enough of being sad... :)
« Reply #8 on: Sep 08 2012, 11:35 PM »
I know this is an old post by Ben...but just want to say....when you start feeling dizzy ect, I honestly dont know how you try a cary on as normal...when your balance is away and the heart starts racing, anxiety ect starts.....I bow to you if you can do this....I cant.....it scares the s**t out me

NEWOSA65

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Re: Enough of being sad... :)
« Reply #9 on: Sep 09 2012, 09:44 AM »
I think you have a very strong point - the bit where you said that you was able to enjoy your motorcycle journey from NZ to Europe without being bothered with the MD symptoms!  It does seem that way though... it happened to me!  I recently went on a cruise for 2 weeks - before i went my tinnitus in my good ear was horrendous and i was stressed every single day wondering if the illness was about to enter my good ear.  I recall leaving that morning and heading towards Southampton.  As soon as i boarded the ship and and cracked open that bottle of champagne and started eating everything i knew i shouldn't have eaten(!) i never even noticed my tinnitus!!!  In fact my good ear was 'quiet' throughout the entire holiday and i broke every MD rule in the book - i just ate and drank alcohol all day everyday (that and other things :D )!  So i reckon there is some truth when it comes to improvements in MD and changes in lifestyle???!  When i arrived back home things continued to be good but later the tinnitus returned!  Some may think it was related to remission but i strongly disagree as this sort of thing has happened before to me when i have made adjustments in my lifestyle.  Just thought i'd add this and wonder if anyone else has experienced anything similar?  Cheers, Simon :) ps i often wonder if we any of us won 10million on the lottery how much impact that would have on our MD symptoms?

Offline cuddlescat

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Re: Enough of being sad... :)
« Reply #10 on: Sep 09 2012, 04:04 PM »
Judging by the amount of ppl who've won the lottery but are not at all happy after the initial excitement I'd say it would have a negative effect.

Personally I think stress has an enormous effect within MD a within other illnesses. Whether it triggers worse symptoms or whether your symptoms are a similar strength but your coping strategies are weakened I think is individual to each person.

I also think it's difficult if not wrong for  individual's to deem someone elses symptoms to be 'milder' than others not knowing that person, as everyone thresholds are different.
Mine got described as 'mild menieres' as in not the proper one, but having been told by several specialists during treatment for my other health condition that I have a much higher than normal threshold especially for pain, my gp seems to think my MD symptoms severe but that due to numerous coping skills i've learnt I manage on the whole, but if i'm stressed our tired things are much less tolerable.

Sorry to have highjacked the thread - stress has allot more effect than many people appreciate.

Regards
Breathe in courage; breathe out fear

NEWOSA65

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Re: Enough of being sad... :)
« Reply #11 on: Sep 09 2012, 10:38 PM »
Hi Sarah,

Thanks for your reply.

With regards to the medications and Menieres, had the likes of Cinnarizine worked for me I would never have gone forward to have gentamicin treatment and later, the labyrinthectomy.  I tried every med in the book but none of them made any difference to my usual 4 - 5 five to eight hour attacks that i was having every week.  The medications just did not touch these attacks and i was practically overdosing on Cinnarizine, serc and stemetil and diuretics ALL daily!!!  However when i first started out with this illness the Cinnarizine did make a difference as my symptoms were very mild and infrequent in those days... I just wish that it had never gotten any worse because i would have been quite happy to avoid destructive treatments later which cost me one of my balance mechanisms and sadly my hearing.

Sorry if i didn't make things clear enough but what i was putting across was the fact that when I eventually was diagnosed with 'true' menieres the meds such as Cinnarizine made no difference to my symptoms unlike many years before when the Cinnarizine did help?

I hope that the Cinnarizine continues to help you or better still that  your MD backs off completely,

Take care,

Simon :)

Offline Benny01

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Re: Enough of being sad... :)
« Reply #12 on: Sep 10 2012, 12:46 AM »
Hey folks :)

Stu, scares me too, but giving up on life is just not an option... Oscar Pistorius says it best "You're not disabled by the disabilities you have, you're abled by the abilities you have". For me, I am still abled, regardless of how hard this can be. Don't give up fighting this, for me it's the best way of coping, even if that does mean having to pick yourself up time and time again. :)

As for lottery, I guess it depends on the situation you're in, if your stress is primarily governed by debts that you can't pay due to not being able to work etc, winning the lottery would be awesome. It's not the answer to your prayers and you can't buy a cure for MD, but under any circumstance as I see it, it would help with a lot of things. I'd love to win it! And could probably increase my chances of doing so if I actually done it :D

With regard meds, I'm honestly not sure if they've ever really worked for me or not. When I started getting the harsher MD problems, it seemed to all come at once. I was only officially diagnosed with MD around a year ago, but it's been a damn tough year and next step for me is VNS. I am on a large amount of daily medication which I do stick to as I guess it's possible if I don't take them, things may get worse.

Benny :)

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Re: Enough of being sad... :)
« Reply #13 on: Sep 10 2012, 10:26 AM »
Hi Benny,

Thanks for your message... yes, winning the lottery would not cure our MD but as you rightly say it could improve our symptoms IF our symptoms are related to stress maybe caused through having insufficient money.  If money were no object and we could all live our lives the way we wanted then i just feel that maybe our MD symptoms would improve (maybe have longer periods of remission ect).  Also of course we could seek private help without having to wait for the NHS for months and months!  So surely it would be an advantage to all of us?  Sarah, i for one would be more than happy to win 10 million quid and to risk it having a negative impact on me!!  Benny, you need to start doing the lottery methinks - you remind me of my otherhalf who constantly tells me she would love to win a few million quid so that she could give her job up.... problem is that she never enters it!!!! LOL

Cheers mate ;D :)

Simon

Offline chrissieg

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Re: Enough of being sad... :)
« Reply #14 on: Sep 10 2012, 11:08 AM »
I,ve never bought a ticket either. Whilst I would love to win a few thousand, enough for a good holiday, say, I would hate to win millions and the responsibility that would bring. I would feel I wanted to give some away to charity but who would that be - the blind, the hungry,MD sufferers , the homeless? All too much , more stressful than being poor!
 
Chrissieg

Offline Benny01

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Re: Enough of being sad... :)
« Reply #15 on: Sep 10 2012, 03:20 PM »
lol Si :) I could increase my chances 100% with that simple action and additionally, I entirely agree with you :D

Chrissie, I have a GREAT idea! If you win 10m on the lottery, take out enough for your nice holiday and donate the rest to "The Benny Care Trust", believe me it would be VERY well received ;)

Benny :) xoxo