Author Topic: attacks  (Read 2925 times)

Offline loretta

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attacks
« on: Jan 22 2012, 04:26 PM »
Hi all Loretta here i  have still not been diagnosed but my specialist says yes its menieres i get my attacks early in the morning can not sit up in the bed as i get very sick i keep falling to the left and can do nothing , my attacks last for about 2 / 3 days

Offline Benny01

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Re: attacks
« Reply #1 on: Jan 23 2012, 05:22 PM »
Hi Loretta and welcome :)

2 / 3 day attacks? I really feel for you. How often do you get these? If you're specialist is saying that you have MD, but you haven't been diagnosed with it, who will be diagnosing you? What have they given you for this so far? How long have you been experiencing these attacks? Outside of the vertigo, what other symptoms do you have?

Ben

Offline loretta

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Re: attacks
« Reply #2 on: Jan 23 2012, 07:22 PM »
Hi Ben
          loretta here this current attack is now in its 5th day today monday i fell over again but this time i injured my leg and hand i seem to fall at the end of attacks for no reason i have been getting attacks since novembed 2009 My specialist says i have m/d but he wont commit to paper yet my attacks are getting worse each time but irish health you have to be nearly dead before they listen to you . lorettajavascript:void(0);

Offline Elaine

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Re: attacks
« Reply #3 on: Jan 23 2012, 07:38 PM »
Hi Loretta ,
Welcome from me .
Sorry you're having such a hard time .Are you having total spinning for that length of time or just constant imbalance inbetween attacks ? Sounds like you need more tests and some medication .Are you on anything yet ?
Hope this helps ,
Elaine xx

Offline loretta

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Re: attacks
« Reply #4 on: Jan 23 2012, 08:55 PM »
Hi i am having spinning with imbalance all of the time i am on serc 16 loretta

Offline loretta

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Re: attacks
« Reply #5 on: Jan 23 2012, 11:30 PM »
hi all if things were not bad enough i was in the house 2day went out to the garden for a little fresh air and what happened I FELL OVER NOTHING  i do fall a lot i fractured my left wrist and have a blooby elbow n knee
                                                                           loretta

Offline Benny01

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Re: attacks
« Reply #6 on: Jan 24 2012, 08:41 AM »
Hey Loretta,

I'm dizzy pretty much 24/7 also, I feel nauseous and have balance problems. I don't fall much at all though, but it happens. Not trying to lesser the problem, but it's the spinning that makes it the worst in my opinion and I only get that during attacks and I can not walk at those times, let alone fall over :)

Have you tried different meds? Brands? Some seem to be more effective for some people than others. Is it Dihydrocloride that you have? As they haven't diagnosed you with MD (officially), what are they suggesting to be the cause of your problems and outside of prescribing you Betahistine, what are they looking to do to help you? What tests have they done?

As you've been suffering with prolonged attacks lasting periods of 2 days + I would push them incredibly hard to do something more than it sounds like they are. I get a number of attacks, but they're never that long.   

Ben

Offline Dizzybee

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Re: attacks
« Reply #7 on: Jan 24 2012, 11:28 AM »
Hi Loretta
I have spinning attacks like you that last for weeks, i haven't got MD because i don't have any hearing loss. I was first diagnosed 6 years ago with a inner problem and BPPV, but recently my consultant changed his mind and NOW says I have MAV. I don't think he really knows so all I do is is manage it.  I have used a walking stick for nearly 5 years now which I just couldn't do without. It has saved me from falling so many times. I do still fall but mainly inside. I have really violent spinning attacks that throws me against the wall. So i have a really sore left arm too.
As for medication I am allergic to alot of meds so I have to be really careful what I take. I take stemitil for really bad flare ups but only for a short time. And sometimes a travel pill will calm it down for a while. I think the best advise is to keep active, some days all i can do is to walk around the garden but i will do this several times a day.
I agree with Ben the vertigo is worse of all the other symptoms I get.
Dizzybee
   

Offline loretta

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Re: attacks
« Reply #8 on: Jan 24 2012, 08:06 PM »
hi i also dont  have any hearing loss but the doctors are doing nothing to help me i am getting a brain scaN would u believe in DECEMBER .
  i feel they dont want to know but i am pushing them for more tests and treatment Loretta

Offline Dizzybee

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Re: attacks
« Reply #9 on: Jan 24 2012, 08:55 PM »
Hi Loretta
I have always had the feeling they don't want to know but you do have to keep pushing for answers after all they are the Doctors and they are suppose to advise us. Even if they can't cure us we do need to know how to manage these problems.
December is a long time to wait, why don't you see if your GP can bring the date forward.

Dizzybee

Offline Benny01

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Re: attacks
« Reply #10 on: Jan 25 2012, 09:36 AM »
December? That's inexcusable in fairness... Go to your GP, tell him / her how much you're suffering with this and don't be afraid to really place an emphasis on how much it's impacting your everyday life and that you need something done urgently. Your GP WILL be able to get this appointment brought a long way forward. No hearing loss? Does your hearing fluctuate at all? Does it drop out or become more sensitive either pre or during an attack? Very unusual to suffer no hearing loss with MD.

Anyway's, I've been through this many times myself and I always go to my GP. I had a cholesteatoma removed around this time last year, but the original date that the MRI was scheduled in for was mid March. So I pushed and pushed until not only had the MRI been brought forward to before Christmas, my surgery was done 6 weeks later, so it all ended up happening very quickly.

They had initially diagnosed me with, Meniere's, I was a bit clueless about it then and was sure that I had another c-toma, which I did, but it's also the case that I would have had MD then.

Point is, you NEED to know what's going on. Don't let them just push you from place to place without actually doing anything.

Ben

Offline loretta

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Re: attacks
« Reply #11 on: Jan 25 2012, 07:54 PM »
Hi all i get very sensitive to sounds before an attack and for a while afterwards i dont think my hearing is affected but i could be wrong as i need things turned up quiet loud to hear but then again i have not had any tests  yet i am to see doctor on Monday Lorettajavascript:void(0);

Offline loretta

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Re: attacks
« Reply #12 on: Feb 07 2012, 11:25 PM »
Hi everyone can anyone tell me how or if its possible to avoid drop attacks had 1 two weeks ago and fractured my wrist and did my knee. Went to doctor and would u believe they had no record of me even been refered to specialist or why ????got  a different doctor this time and she put me on serc 16 permanent  plus anti nausea tablets  Loretta

Offline Benny01

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Re: attacks
« Reply #13 on: Feb 08 2012, 09:50 AM »
Hey again, Loretta :)

Like you, before I have a full spinning attack, I also get sensitive to sounds, but sometimes my hearing will drop out completely. If you need to turn things up quite loud it certainly suggests some hearing change, but it could also just be clarity of sound that makes voices etc sound unclear.

What else did your doctor say about progressing this for you? Get all your documentation sent from your old GP to your new one, he / she obviously needs to have this. Did your new GP say anything about forwarding you on to a specialist? More specifically, a neurotologist, MD is one of the areas they specialise in. Note: Neurotologist, not neurologist, they're very different :)

With regard drop attacks, I don't believe there is anyway of avoiding it, shame as it is.

Benny :)

Offline loretta

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Re: attacks
« Reply #14 on: Feb 09 2012, 11:35 PM »
Hi Benny i have got on to specialists secretary and am waiting for my referal file to be sent to my new doctor loretta

Offline Benny01

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Re: attacks
« Reply #15 on: Feb 10 2012, 02:42 PM »
That's good to hear :) Let us know how it progresses please... And remember, this is your life that's being so affected. Push them :)

Benny

Offline loretta

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Re: attacks
« Reply #16 on: Mar 10 2012, 11:32 PM »
hi all still waiting for letters to go 2 my doctor loretta

Offline loretta

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Re: attacks
« Reply #17 on: Mar 24 2012, 01:45 AM »
Hi all loretta here sorry i have not been in contact but i was knocked silly for about 9 days and i could not tell anyone as i do not want family to know i am a lot steadier now so hopefully it will last lor