Author Topic: MD or BPPV ?  (Read 2772 times)

Offline DJ

  • Member
  • ***
  • Posts: 90
    • View Profile
MD or BPPV ?
« on: Aug 12 2012, 12:05 PM »
Although the doctor said he thought I had the start of MD I am now wondering if in fact its BPPV. My brother who was diagnosed with MD was seen by a new doctor who suggested it could be BPPV - Benign Paroxysmal Positioninal Vertigo - sorry about spelling :)
They tested him and did a number of Epley manouvers and others. The first ones made him really bad and he had to stay at the hospital, but they tried again and he said it was an amazing result. He now does the exercise himself and only goes back to the hospital if he can't sort it himself. I have had another spinning episode yesterday which has left me with very bad balance and if I move my head certain ways I fall over. I didn't have the tinnitus warning this time but my eyes really ache badly as if they have been really strained. I was thinking about seeing my GP for a second opinion. Has anyone else tried this?

Offline The Wobbler

  • Trusted member
  • *****
  • Posts: 451
    • View Profile
Re: MD or BPPV ?
« Reply #1 on: Aug 12 2012, 06:46 PM »
It seems there is a lot of commonality between MD and BPPV.  One question what are your audiogram results?  Do you have hearing loss?

I know that classic MD involves fluctuating but progressively permanent hearing loss.  I am not sure whether BPPV has the same symptoms in that regard.

Offline DJ

  • Member
  • ***
  • Posts: 90
    • View Profile
Re: MD or BPPV ?
« Reply #2 on: Aug 12 2012, 07:30 PM »
The last time my hearing was tested they said it was within the normal range but I do find it increasingly very difficult to handle load noise or be in a room where lots of people are talking I dont seem to be able to split the various sounds up to hear. So not so much a hearing loss but the ability to home in on a specific sound.
I find looking at lines of things, supermarket aisles the box shelf units the wool shop keeps their wool in, really wierd but often looking at that sort of thing will send my balance all over the place. Not sure what that is about if thats MD or BPV. I guess I am just really hoping its BPV.

Offline jojo

  • Trusted member
  • *****
  • Posts: 406
  • Gender: Female
    • View Profile
Re: MD or BPPV ?
« Reply #3 on: Aug 12 2012, 09:35 PM »
Hello

I have been diagnosed with Menieres by an ENT specialist, first my doctor thought I had Bppv, then she said she thought I could have Menieres, hence the reason why she sent me to the ENT specialist.  I also have the same problem with a room full of people.  I have hearing loss and tinnitus with Menieres!!  I also have eye flickering symptoms too. Things like a radiator with vertical lines on play havoc with my eyes.

I hope this is of some help!!!

Best wishes

Jojo

Offline Elaine

  • Standard User
  • *
  • Posts: 2419
  • Gender: Female
    • View Profile
Re: MD or BPPV ?
« Reply #4 on: Aug 13 2012, 05:38 PM »
It's quite possible to have both conditions co-existing and the fluid build up from the MD can cause BPPV like symptoms without going to full attacks .
Hope this helps ,
Elaine xx

Offline DJ

  • Member
  • ***
  • Posts: 90
    • View Profile
Re: MD or BPPV ?
« Reply #5 on: Aug 14 2012, 06:28 AM »
Thanks for all your replies.
I have had another spinning session. I turned over in bed and ping someone put a coin in the merry-go-around grrrrrr so now back to square one again all over the place, ears feel like the pressure is going to make them explode they are worse than after the last episode a couple of days ago. The headache is back grrr that had started to ease off last night. When I had managed to get down stairs I heard the cat and went to look under the table - bad move and stupid to try but I did it without thinking so went over. I guess I will learn in time what not to do.

Typing this is taking ages as I dont touch type and looking up from the key board my eyes seem to go all over the place as does the room. This time though I managed to relax myself quicker whilst it was spinnning and I think that helped a bit. I had a great chat with my brother who helped me a lot with how relaxing and reassurring yourself can help to stop the adreniline cycle racing along. Do any of you find turning over in bed can start off a spin? I am still trying to work out if this is MD.

I really need to get back into my studio today as I have work to complete for an exhibition that needs handing in on Thursday perhaps I should sleep sitting up again for a couple of nights to reduce the risk of the spin so I have more chance of working and getting things finished in time. I think I will have to get a new chair in there as the ones I have are those normally comfy ones that turn around. but I can do that by myself  :) 

Offline jojo

  • Trusted member
  • *****
  • Posts: 406
  • Gender: Female
    • View Profile
Re: MD or BPPV ?
« Reply #6 on: Aug 14 2012, 08:19 AM »
Hello again

Poor you!!!  When I turn over in bed (believe me I try not too!!) I can feel my head starting to spin if I turn over too quickly for my head, if that makes any sense.  I have learnt over time to turn over very slowly.  It is the same when getting in and out of bed.  When I first lay down, I lower myself down very slowly.  When I wake up in the morning I open one eye first, then the other and If the room is not spinning I sit up really slowly and get out of bed.  Just be careful at the speed you stand up.  Normally I find I am ok if I do this!!!! You will over time get used to doing this as I have.  I really think it helps.  This was a good tip from a friend of mine who has vertigo, but was not diagnosed with Menieres 10 years ago.

When I first got Menieres,  I went to bed one night and plonked myself down and that was it the room started spinning.  I closed my eyes and thankfully went to sleep.  But, even though I was a sleep all night, when I woke up in the morning I had to stagger to the bathroom.  Within an hour I was very sick and the vertigo was so bad I just had to go back to bed. This vertigo lasted all day and the following 3 to 4 days left me unable to keep my balance properly.  It was awful to say the least.

I now am so careful about moving my head.  I think over time it will become second nature which hopefully will stop some of the spins for you!!!!

Best of luck.

Jojox

Offline DJ

  • Member
  • ***
  • Posts: 90
    • View Profile
Re: MD or BPPV ?
« Reply #7 on: Aug 15 2012, 11:18 AM »
This is where I find this group so good, being able to share and not feel alone. Also very importantly having constructive things to suggest so not just all gloom and moans but great to be able to do that as well when needed.
Thanks to you all.