Author Topic: Labyrinthitis  (Read 18297 times)

Offline Alec

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Labyrinthitis
« on: Jun 04 2003, 02:33 PM »
A friend of mine had Labyrinthitis several months ago. As you probably know, it's just like MD but luckily for sufferers it goes after a few months. She has been very supportive and caring since then, she says I now know what MD sufferers go through.
Alec (forum Moderator)

Whenever I hear the term, 'let's go for a spin', it makes me cringe.

Offline Julie

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RE: Labyrinthitis
« Reply #1 on: Jul 17 2003, 10:00 PM »
I had labyrinthitis for longer than a few months, all the doctors/specialists I saw kept saying it will go eventually, but it never did. (it all started in Jan 1997).
I've now been told the labyrinthitis damaged my balance organ and the nerves cant compensate, therefore i've still got the symptoms.
My hearings perfectly normal and I only get very occasional mild vertigo attacks (I did get a few bad ones at the beginning). I dont envy MD sufferers who get these attacks but I get permanent 24/7 off balance and dizziness so I cant win.

Julie

barbara

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Labyrinthitis
« Reply #2 on: Jul 17 2003, 10:19 PM »
Hi Julie,
Before the op. I got both the violent spins and the 24/7 balance and dizziness. I still have 24/7 balance problems  but I know I will not spin. It makes it easier to plan round things and I now have a life. You are right, the acute attacks are no fun and I feel very sorry for those who still have them. :roll:  
I think all the ENT staff, doctors, audiologists etc. should have to have caloric tests that way they would know what it feels like and be more sympathetic. :twisted:

Offline Alec

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Labyrinthitis
« Reply #3 on: Jul 24 2003, 04:02 PM »
Barbara, remind me, did you have a nerve section in both ears?  :?:
Alec (forum Moderator)

Whenever I hear the term, 'let's go for a spin', it makes me cringe.

barbara

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Labyrinthitis
« Reply #4 on: Jul 24 2003, 11:07 PM »
Hi Alec,
No I had a labyrinthectomy in just one ear. No one will ever get their scalpels anywhere near my supposedly 'good ear' :!:

Offline Paulie53

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Re: Labyrinthitis
« Reply #5 on: Apr 03 2008, 10:20 AM »
I am just wondering what the difference between MD and Labyrinthitis is? as from what I have read the syptoms are very very similar, and it seems that in some cases in can go on for a few years etc... Could anyone enlighten me on this please?

Paulie

Offline malone

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Re: Labyrinthitis
« Reply #6 on: May 19 2008, 03:03 PM »
Hi Paulie

I know you posted this a while ago but I'm fairly new to this Forum and am still wading through all the posts on here.  :)

I suffered a sudden attack of spinning rotary vertigo back in November 2007 for which I ended up at hospital who diagnosed me with Labyrinthitis.  It is now May 2008 and I am still suffering with the symptoms.  During this time, various doctors/specialists/physios have mentioned the possibility of Menieres to me but no one has diagnosed me with that yet.  At the moment, I am still classed as suffering with "acute Labyrinthitis".

From what I understand, Labyrinthitis and MD have very similar symptoms and initially it can be hard to distinguish between the two. 

From my understanding, the differences are that Labyrinthitis is usually caused by a virus... apparently it can be any virus e.g. a cold or flu... which for some reason goes on to attack the inner ear.  The effects of Labyrinthitis are not supposed to be permanent and some people will recover after a couple of weeks, while some can have it for at least 2 months.  There are, however, an unfortunate few who can suffer for a few years and then all of a sudden it goes away.  Usually, there is no permanent damage to the ears or hearing and after a while the body/brain learns to compensate and you recover.

No one is really quite sure what causes MD but it seems to be something that causes a build up of fluid in the inner ear which eventually bursts and spreads to parts of the ear that it shouldn't.  The effects of MD are permanent and with MD the hearing is usually affected.

It can be hard to get a definitive diagnosis straightaway.  My docs have told me that it "could" be Menieres but that I would have to suffer continual attacks over a period of time for them to be able to diagnose this.  I think regular hearing tests are also needed to diagnose MD as with MD there should be a sign of hearing loss in the damaged ear.

As I say, I'm not a doctor and this is only my understanding from what I've read/been told by various docs.  Hope this helps a bit.

Miranda x

Offline puggster

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Re: Labyrinthitis
« Reply #7 on: Mar 09 2009, 03:37 PM »
i was originaly diagnosed with laberinthitis over five years ago but since the symptoms come in waves or attacks as some will describe ive been fefered back tho the ent for more tests to confirm what is actualy wrong

i did have constaint vertigo and i was very ill in the first year but the attacks seemed to fade then start

i still get balance trouble like the rooms spinning even when not in an atual attack and i often fall over due to sudden balance changes

im not sure if anyone has had that before but its very scary

one minute you can be walking and its as if you have suddenly been tiped over which make you fall over
ive had a few bumpy trips down the stairs lets just say lol

anyhoo the docs are certain that its MD as i was tested on a difrent medication called cinnarizene and it seems to help much better

i used to get procarizerine i think it was called but just stopped me being sick but the new one dosent stop me being sick but seems to help supress the attacks much quicker

i also take anitriptyline to help stop night attacks and as extra pain relif from other heath problems
alongside cocodamol

but anyhoo i know how the constaint attack feels like
being compleatly drunk most of the time in which might appeal to some its pretty nasty getting it

puggz

Offline Lambo

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Re: Labyrinthitis
« Reply #8 on: Mar 09 2009, 11:28 PM »
Hi, I too started out with labs almost 2 years ago, have a very violent attack along with the sweats etc, just like a viral infection, I was treated with antibiotics and told to return 2 weeks later if it had not eased, having returned to the GP he sent me to the ENT at Basildon Hospital where they did a hearing test, I did show a slight loss of low level hearing in my left ear but nothing to be concerned about, I was given VRT to try.

almost 12 months later after the original diagnosis of Labs the ENT sent me for balance test, everything seemed Ok on the balance board but they did find an issue when I had the caloric testing, the results came back with a diagnosis of atypical MD, I do not get all the symptoms of MD, I don't suffer with tinitus and my hearing is not too bad (although it has not been restested in 12 months).

I don't get rotational spins, mine is more like being in a drunken state, very wobbly and off balance, I get very full ears similar to being on an aircraft when your ears pop, I get confused easily during an attack, stumble over words, feel as if I am disconected from everything around me.

I have been taking betahistine for over 9 months now, I think they are working in some form or other but I have not stopped them to see what I am like off the meds, I still get wobbly and confused almost every day..


ManiloonySally

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Re: Labyrinthitis
« Reply #9 on: Mar 10 2009, 09:47 AM »
I was also told i had labyrinthitis years ago, and was told i would be better after a couple of weeks, unfortunately i wasn't and after 2 useless ENT specialists, i found a great one and after several years i did get a diagnosis of MD.  It is hard because so many balance disorders give similar symptoms, and i think all are equally scary.

Sally

Offline Christina

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Re: Labyrinthitis
« Reply #10 on: Mar 10 2009, 10:58 AM »
I think labyrinthitis seems to be the bog standard diagnosis for many people who present at the GP with dizziness and vertigo.  It's virtually impossible to tell in the short term whether it's labs or MD and it's only with time that a pattern develops and the symptoms don't go away. 

Chris x
not waiting for the storm to pass, but learning to dance in the rain ...

Offline Beckybec

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Re: Labyrinthitis
« Reply #11 on: Mar 30 2009, 09:47 PM »
I too was diagnosed with labyrinthtitis 6 years ago, but I had had a chest infection from a bad cold.
It did get better but I think this initialy caused some inner ear damage that never fully went.
They suspect MD now because I seem to fit every sympton. 

I never liked feeling drunk even when it was booze related, Puggster

Bec

Offline Alec

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Re: Labyrinthitis
« Reply #12 on: Jun 30 2009, 11:05 AM »
I think labyrinthitis seems to be the bog standard diagnosis for many people who present at the GP with dizziness and vertigo.  It's virtually impossible to tell in the short term whether it's labs or MD and it's only with time that a pattern develops and the symptoms don't go away. 

Chris x

Yup, I agree. Labs is often used as the bog stand diagnosis. I supose in cases where the probelms last for just a few weeks or months it is the coreect one too, but once you get problems over several months it's time to get checks to see if it is MD.
Alec (forum Moderator)

Whenever I hear the term, 'let's go for a spin', it makes me cringe.

Offline glynis

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Re: Labyrinthitis
« Reply #13 on: Jan 21 2011, 08:47 PM »
Hi,I have labrynthitus and room spins so fast for seems like ages and sick and also now got told got MD 12 months ago.My ears wont stop ringing really loud 24/7.
look for the good in everyone and have a good life !!!