Author Topic: Labrynthitis  (Read 2075 times)

Offline T.smith2005

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Labrynthitis
« on: Jan 25 2014, 10:27 AM »
I have been diagnosed with labrynthitis, very similar to and often confused with bppv and md, thankfully it will eventually go away. I have been put on stremitil for the dizziness but had to stop as I had an allergic reaction to it. I am now on buccastem betahistine and amitrypteline. The amitrypteline works to some degree but makes me even dizzied (at least it deals with the extremely pressurised feelings in my head) the buccastem doesn't even humour the sickness and the betahistine not even sure what it's meant to be doing, coz if it's nothing it's doing a great job! I have had this for almost 5 months and was misdiagnosed with bppv, my drs are not even humouring the idea of sending me to an ent specialist or even an MRI to rule anything else out. Does any one have any suggestions on where I stand or what I can do, as like many of you will agree, I'm sick of feeling like I'm stood on a boat, attached to a mooring post on rough water. The recurring head pain and the rest of the symptoms are affecting my life greatly, including my job as everything it says to avoid I cannot as I work in a busy crowded highly stressful shop, with loud sounds really bright lights, zero dark quiet escape routes and focusing on people in a customer service queue. If any one has even a tidbit of advice it is surely welcome.

Thank you

Tracey

Offline T.smith2005

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Re: Labrynthitis
« Reply #1 on: Jan 28 2014, 03:27 PM »
Ok been to the dr again who has increased the amitrypteline from just 10mg (1 tab/night) to 20-30mg (2-3 tabs/ night). Really not sure if this will help as all the amitrypteline does is make me feel even dizzied like I'm on a seesaw... Really not sure what the best path is, they still don't want to send me to an ent. Really not sure what to do here...

Offline chrissieg

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Re: Labrynthitis
« Reply #2 on: Jan 28 2014, 05:02 PM »
You could ask to be referred to a vestibular or balance physiotherapist who will teach you exercises to gradually increase your coping .Not all areas have these but it may help your cause to be referred to ENT if you ask as you may need to go further afield. I was referred by my ENT consultant but I think others have been through their GPs.
Personally I think 5 months suffering is enough without a more expert eye having a look at you. Can you ask to see another GP in the practice. Even after referral , it can take 3-4 months to get an actual appt so the sooner you shout loudly the better.Where do you live Tracey - we may be able to tell you who's a good ENT for balance in your area.
Keep in touch, I hope you can make some progress soon
Chrissie
Chrissieg

Offline Dizzy Hoon

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Re: Labrynthitis
« Reply #3 on: Jan 30 2014, 12:21 PM »
I would demand a referral to a specialist.  At the very least I would say you should have a MRI - it would rule out if anything really nasty going on.

The Menieres Society has useful information about exercises that can help with balance/inner ear disorders.  I put off doing these as I had also heard that without professional supervision it could be dangerous.  Well I finally paid to see a well respected physiotherapist for VRT (vestibular rehabilitation therapy) and the exercises he gave me were very similar to the exercises in the Menieres Society booklet and he said that they can't do any harm. I had been off work for 6 months and within a month of doing the exercises I felt alot better and was able to start planning a return to work.  My ENT consultant keeps reiterating that the medication, low salt diet and exercises have helped.... personally I put more weight on the exercises as I have always had a fairly low salt diet and had been taking the medication for most of my sick leave.  But everyone is different and I know people on this sight will swear by medication or low salt.

Hope things start to improve for you, but I really think you should be seeing a specialist and would be really harrassing your GP to make this happen.

Offline Rosemary

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Re: Labrynthitis
« Reply #4 on: Jan 30 2014, 07:10 PM »
I second the exercises too - really helped me can feel the difference day by day!

Tsmith - I would go back to GP and ask to be referred to an ENT consultant too. At the very least he/she needs to explain why they won't!

Take care