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Author Topic: Help! Which meds help ear pressure?  (Read 3685 times)

Offline jennywrees

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Help! Which meds help ear pressure?
« on: Aug 13 2014, 10:17 PM »
Hi Everyone,

I am currently experiencing raging tinnitus and a HUGE build up of pressure in my left ear - I feel as though someone has thumped my ear, and feel like crying or screaming........!  I am fairly newly diagnosed with MD and have various medications which I can take on an as needed basis but I am somewhat confused as to which medication might help lessen the ear pressure.  I have a diuretic, Serc and Buccastem/Prochlorperazine.  I would really appreciate any pointers?  Thank you.

Offline John59

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Re: Help! Which meds help ear pressure?
« Reply #1 on: Aug 14 2014, 12:33 AM »
Hi Jenny,
Yes the fullness and Tinitus are very debilitating.
I'm answering your post because you sound a bit down and asking for advice though there are many on here more experienced than me.
I would say you need to be seeing your GP regularly or your ENT consultant and agree a line of approach which you can both monitor.
As we've been discussing in a few other posts recently, the most common first line of defence is 3 x 16 mg Betahistine (serc) and that can take a week or two before you start feeling any benefit.
But Serc does not work for everyone.
That's why it's best to do it in consultation with your GP or consultant.     
 

Offline jennywrees

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Re: Help! Which meds help ear pressure?
« Reply #2 on: Aug 14 2014, 11:50 AM »
Hi John,

Thank you, I really appreciate your kindness and midnight oil response.  Yes, I was really suffering, am more stable now and coping better.   

After my diagnosis by ENT, which was about a year ago now, I haven't had another appointment with them but am managed by my GP surgery.  The GP is handing out any of the medication that was recommended by ENT - I have cupboards full of it! But after that I seem to be rowing my own boat and seeing where it gets me.  I have been told I must just live with the symptoms as best I can.  I'd understood, or maybe mis-understood! that Serc helped with balance but not ear pressure this is why I thought reaching out to others who are fellow sufferers might help to find a way forward. 

Once again I thank you for your response.  I will give the Serc a try and see how I get on.

Offline harry

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Re: Help! Which meds help ear pressure?
« Reply #3 on: Aug 17 2014, 04:18 PM »
Hi Jenny,

Serc is considered to be a long term medication and not as and when. You should take it 3 times per day for a long period of time. the amount should have been decided by your consultant or GP.

Diuretics are taken daily for a period of time again determind by your GP but normally a few months.

Other medication is normally as and when.

You should really see your GP or see your consultant again to set out a treatment programme for a period of at least 6 months.

I am not sure there is medication to help with the fullness much. But as with all things MD it comes and goes and the symptoms affect everyone differently on a daily basis. You will have lots of good days and some bad.But I am afraid there is no miracle cure you just have to adapt your lifestyle when you have bad days and enjoy the good days.

SERC is a well known drug for MD and helps a lot of people with the vertigo side of things but you need to give a go for months before making deciding if it works for you.

Good luck


Harry

Offline jennywrees

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Re: Help! Which meds help ear pressure?
« Reply #4 on: Aug 17 2014, 08:50 PM »
Hi Harry,

Thank you for your response. 

Yes, I am rather confused about my meds and will follow your advice and see my GP for a discussion. 

The ENT specialist particularly asked me not to take SERC all the time as he did not want my ear to be what he called 'sedated'.  He suggested I take SERC if I felt an attack might be coming on and then only for a period of about 2 weeks.  I did later speak with my GP about this has I had understood that SERC takes a while to work, my GP stated that I can take the SERC I have been prescribed 16mg 3x a day, constantly if I feel it is helping. 
I did try it for about a month but had very upset stomach and tiredness,  as I also get these as part of the Meniere's I could't really tell if they were helping or not, and if they were causing side effects or was it the Meniere's?  As you can see I have become rather confused about the meds issue and I finally decided to just take Buccastem/Stemetil when I was extremely nauseous and found this also seemed to help best with unsteadiness and vertigo.    The GP seems happy for me to find my own way and didn't seem to have too many answers for me, but I will go back and have another chat with them. 

Once again, thank you for your response - I appreciate it.

Jenny

Offline harry

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Re: Help! Which meds help ear pressure?
« Reply #5 on: Aug 18 2014, 12:50 PM »
Hi Jenny.

I only use SERC as a medication but in high dosages (144mg per day)with no side effects. So I cannot offer any advice on the other meds.

The tiredness is a very common symptom of MD as your body has to work very hard to cope with it and any anxiety you may have. The stomach upsets could be drug related or not depends if you feel the same when not taking them.

GP's in general do not have much knowledge of MD and are often guided by Consultants. The problem is that many ENT consultants also lack knowledge as they are mainly surgeons who do not specialise in inner ear problems. It a bit random throughout the country some are very good others just do what they think is right. I see an inner ear consultant rather than a ENT consultant.

But SERC is not a short term fix and the idea is that it does reduce the effects of vertigo in MD.

It should of course be noted that it does not work for some people and that it is not used as a treatment in some countries (USA) but in Europe it is widely used as a known long term treatment.

I would go and see your GP again but would also ask that until you are happy that you stay under the hospital and have regular reviews ( every six months or yearly)

One of the  main problems with MD especially when you are new to it. Is that it is very frustrating and you have a need to want to control it or feel that you are getting it under control. It just doesn't work like that. It is a long term chronic illness which at times will make you feel very sad,but you will have times ( it could be months) when you feel just that little bit more normal and you have to make the most of those moments.

I am bi lateral and have had MD for over 15 years but for the last two years I have had no real vertigo problems and I am hopeful that the illness has now past.

Remember that the treatment plans are trial and error and there to help reduce the effects of MD, Some work some don't. Some involve cognitive behavioural therapy to help you cope others involve surgery to stop the vertigo full stop.

I hope you get on ok at the doctors

Harry

NEWOSA65

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Re: Help! Which meds help ear pressure?
« Reply #6 on: Aug 18 2014, 01:04 PM »
Hi Jenny - you are already taking the diuretic tablet which is the best choice for the pressure.  Are you on the 2.5mg or the 5mg tablet?  The only thing that normally eases ear pressure is the sac decompression surgery.  This is a safe op to have and in most cases helps eliminate ear pressure and in some cases the vertigo as well!  If the ear pressure is causing your ear to ache or causing pain then the only other suggestion are painkillers.  Hope this has helped?  Hope things improve for you soon.  Tc, Simon

Offline jennywrees

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Re: Help! Which meds help ear pressure?
« Reply #7 on: Aug 24 2014, 10:47 AM »
Hi Harry and Simon,

Thank you for your responses, please accept my apologies for not responding to your posts earlier.  Thanks to what everyone has written in this post I now feel much clearer about meds and Meniere's generally, and very supported, YOU ARE ALL WONDERFUL!

Simon,  I am the taking the 2.5 mg diuretic.  My ear pressure has, thankfully, returned to relatively normal, I always seem to have some feeling of fullness but sometimes, as it just did, it goes sky high and along with the tinnitus causes me great distress.  It is good to know about the surgery option, which if the symptoms become long term unbearable I will research.

Harry,  there was something in your last post which really stood out for me, I will quote it below:

One of the  main problems with MD especially when you are new to it. Is that it is very frustrating and you have a need to want to control it or feel that you are getting it under control. It just doesn't work like that. It is a long term chronic illness which at times will make you feel very sad,but you will have times ( it could be months) when you feel just that little bit more normal and you have to make the most of those moments.

Yes, this is just how I feel, I want to control it so that I can just continue with my life as it was and without the fear of what it might become and what I might lose - my hearing, my ability to work etc.  Each time I am unable to work because of Meniere's symptoms I become depressed and want to fight it, and yes, control it.
I accept your wisdom, which obviously, at least in part, comes from your own experience.  I can sense that you are right in this and next time I am feeling imprissoned  by the symptoms I will try to remember what you have said and wait for it to pass and enjoy the more symptom free times.   

I am glad your vertigo has passed, and I hope that this continue for you.

Thank you to you both and wishing you joy.

Jenny

Offline Bradders

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Re: Help! Which meds help ear pressure?
« Reply #8 on: Oct 08 2014, 06:11 PM »
Hi there,
I can only speak from my own experience but I now take 5mg directic as well as a beater blocker(atenolol 25mg) and have had no fulness in my ear since taking the medication. I have been taking these for just short of two years now.
Hope that helps