meniere

Author Topic: Updated Diagnosis  (Read 1806 times)

Offline Warren T

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Updated Diagnosis
« on: Feb 10 2015, 06:57 PM »
So now since September 2014 I was told Classic Menieres simply based upon the symptoms I was experiencing & the length of attacks etc. The ENT Consultant wanted to see me 3 months later. I managed to get to see him Today so that's some 5 months later.

Now I have been diagnosed with BPPV & been told to stop the Betahistine all together but go back in 1 month.

I was taken to a room & he performed the Epley manoeuvre & I FREAKED OUT BIG TIME! Bang...massive attack as soon as I was laid back & head tilted. Tilted my head to the opposite side Bang...spin out again..sat me up bang..all over the place! He repeated it again! I was prepared & it wasn't as bad but I was all over the place. I had to get a nurse to escort me out to a waiting area where I sat for the best part of 30 minutes before I could walk away.

So now I have to do the Epleys at home & see how I go. The thing is 3 hours later Im still really disorientated...I'm not spinning, I have a massive headache & my hearing is like hypersensitive...the dog's barking is sooo loud!!
" At least I now know why the world spins!"

Offline asiaasia

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Re: Updated Diagnosis
« Reply #1 on: Feb 11 2015, 01:20 AM »
I assume he performed the canalith repositioning procedure, however, I don't believe he followed protocol ...

"Each position is held for about 30 seconds after any symptoms or abnormal eye movements stop. After the procedure, you must avoid lying flat or placing the treated ear below shoulder level for the rest of that day".

Personally, I' d get a new specialist asap.

Offline Warren T

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Re: Updated Diagnosis
« Reply #2 on: May 24 2015, 04:49 PM »
Just thought Id post back after a few months.

I did the Epleys for about 3 weeks & No more spin-outs.
I'm off Betahistine all together.
I have a lot more tinnitus now though & its more prolonged.
I have the odd occasion where getting out of a chair can have me stumbling around like a fool.
I'm still told by my partner that I'm slightly deaf, although she does proclaim I have male selective hearing :)
" At least I now know why the world spins!"

Offline Warren T

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Re: Updated Diagnosis
« Reply #3 on: Jul 14 2015, 07:43 AM »
AT last... I changed my ENT Consultant & had a good examination following a 5 day bout of spinning after 3 months of nothing at all.
The diagnosis is its BPPV & not MD. I had an audiogram & my hearing is poor at 4K else is good (above the 20 line). The Consultant explained to me the differences & why a misdiagnosis was probably made. Apparently the attacks are "similar" to MD but I suffer with no hearing loss or sickness. I'm not on any medication & been advised to retrain the brain back to a "balanced" state by focusing on a single point & very slight movements. If a specific movement causes the spinning to increase then I'm to avoid doing that movement.
I've since found out that BPPV runs in the family on my mothers aunts side of the family...distanced part of the family that I rarely see.

I would like to thank everyone here at MDUK for their help & support but I probably wont be posting any more.
I wish you all a prolonged & healthy life, no matter what conditions you manage with  ;)
" At least I now know why the world spins!"

Offline Ashley

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Re: Updated Diagnosis
« Reply #4 on: Jul 15 2015, 07:16 PM »
Thanks for posting the update Warren and for your good hopes for us all. They are very much reciprocated ;). I'm glad you have a clearer diagnosis and here's to you experiencing the best of health possible. Take good care!
Ashley