meniere

Author Topic: Update on my op  (Read 794 times)

Offline Silver Fox

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Update on my op
« on: May 01 2018, 11:39 AM »
Ok so had the op where eardrum is lifted and impregnated packing is placed behind on the 8th February. Felt unwell for about a week after but it settled down and I almost felt like my old self. Had the odd day where i was a little fuzzy but was still able to function.
So the rest of February, March and April where great until yesterday.
Went to work as normal, however after about an hour I felt a little off, so decided to go home. Then about three hours later at 11am wham Menieres attack, then again at 5pm followed by another in the early hours of this morning.
To say the least feeling rock bottom at the moment.
Will be trying to get an appointment with my consultant ASAP.
Ed.

Offline Gatzby

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Re: Update on my op
« Reply #1 on: May 01 2018, 07:56 PM »
What a bummer for you after all that wait and then treatment. Hope you get to see your consultant very soon and he(she) gets you sorted .
God is a figment of the imagination according to Stephen Hawking and I agree with him.

Offline MissCheeva

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Re: Update on my op
« Reply #2 on: May 22 2018, 02:10 PM »
Hi,

Don't give up hope.  I know you must feel pretty down right now, but maybe another booster shot will help.  My first lot of steroid injections worked, but only for about 6 months.  The second and third lots seems to have done the trick.

I hope you are not spinning too much.

MissCheeva

Offline Silver Fox

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Re: Update on my op
« Reply #3 on: Jun 09 2018, 09:04 AM »
Oh no here I go again 3rd of June another attack. Then followed on the 5th by one in the afternoon which was totally different to like any I have had previously. Iíve always had a pe- warning to an attack but the last one was just like a switch being flicked on. Then again on Thursday the 7th two more attacks the same.
The only change Iíve made is I have had hearing aids supplied by Boots Hearing which have made a tremendous difference to what I can hear. Could these be the sauce of my sudden attacks?
Iíve contacted my consultant and the earliest I can get to see him is 19th July.
My medication has little or no effect. Iím wondering what can be done to help prevent these attacks?
Ed

Offline MissCheeva

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Re: Update on my op
« Reply #4 on: Jun 11 2018, 10:03 AM »
Hi Ed,

I'm sorry you are having a hard time.  The totally unpredictabe nature of this illness can be frustrating to say the least.  When I speak to my specialist there is always an element that this illness does what it pleases and we try to make sense of it.  Trying to find a pattern can help, but it might just be a bad bout you are going through.

It has been warm recently and dehydration has been linked to attacks so make sure you are drinking plenty of water.  Try to keep you stress levels low (I find meditation helps).  Other than that I don't know what else you can try.  Hang in there and hopefully the worst will pass.

I have found recently that drinking too much alcohol can bring on bouts of vertigo.  If I keep to just a couple of drinks I am fine.

I hope this helps and don't loose faith.
Diana

Offline Silver Fox

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Re: Update on my op
« Reply #5 on: Jun 13 2018, 11:50 AM »
Thanks for your words of support Diana. When I was first diagnosed I was advised to avoid alcohol, caffeine, chocolate and salt Iíve had neither since October 2016 and still get the attacks?
Iíll make sure Iím well hydrated see if that helps. If not at least it will keep me active going back and forth to the loo 😁.
Iím wondering if it is my new hearing aids as Iíve had then about three weeks now and Iíve had several attacks in that three week period. So Iím leaving them out for a week or two and see if the attacks stop.
Thanks again.
Ed

Offline MissCheeva

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Re: Update on my op
« Reply #6 on: Jun 13 2018, 12:18 PM »
When I was diagnosed I was told to ditch caffine and reduce my salt intake dramatically.  I wasn't told to steer clear of alcohol.  I don't drink a vast amount, but at a friends party last year there was a free bar and I over indulged and then had vertigo on and off for 6 weeks during which I abstained and eventually the attacks stopped.  I can have a glass or 2 but that is all.

Regarding your hearing aids, to be honest, with this illness I wouldn't discount anything.  I hope the attacks stop soon.

Diana

Offline chrissieg

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Re: Update on my op
« Reply #7 on: Jun 21 2018, 05:38 PM »
I'm the same - no caffeine and  reduced salt intake but I do drink alcohol. I was told by Mr Rea ( whom I tend to see as a God figure in the MD heavens) to avoid red wine as there is an ingredient which can be ototoxic. So I will have white wine, gin and beer and the occasional Baileys or Cointreau without any problems. If I overindulge though, I find I feel terrible and on the edge of an attack - could just be an alcohol reaction anyone would feel but I don't risk it anymore. Over a whole evening- 2-3 glasses of wine or G and Ts seems fine - there is also something to be said for the the benefits of alcohol to relax you .
But I do hope you see some improvement soon

Chrissie
Chrissieg

Offline The Wobbler

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Re: Update on my op
« Reply #8 on: Jun 22 2018, 09:06 AM »
Having watched his You Tube videos (recommended particularly for newbies) I have the utmost respect for Mr Rea in all regards save one.  That is his comments to Chrissie on red wine.  Given the health benefits of the vin rouge I have made it a personal mission to disprove his statement by imbibing a glass or three most days.  As with most things Meniereís we have to finds what works for us, and what our personal triggers are.  Red wine thankfully is not one of mine!

With regard to Dianaís post party offness -  was your diet normal that day?  Catered food is likely to be higher in salt and butter than normal and canapeís and buffet food are definitely on my watch the trigger list.  Can you be sure that it was the alcohol consumption alone?  although anything more than ďmoderationĒ is undoubtedly a risk.

BTW having read the wiki article on ototoxicity it is interesting to note that gentamicin is ototoxic.  That is how it works.  Perhaps my red wine consumption is a daily drip-fed MD palliative?  I think that I had better up my dose!  ;)

Offline chrissieg

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Re: Update on my op
« Reply #9 on: Jun 22 2018, 09:37 AM »
How wonderful would a red wine MD cure be!

I have wondered seriously whether anyone has found cannabis helpful

Chrissie
Chrissieg